In Montana, Conservative Groups See Chance To Kill Medicaid Expansion

Conservative groups are working to undermine support for Montana’s Medicaid expansion in hopes the state will abandon the program. The rollback would be the first in the decade since the Affordable Care Act began allowing states to cover more people with low incomes.

Montana’s expansion, which insures roughly 78,800 people, is set to expire next year unless the legislature and governor opt to renew it. Opponents see a rare opportunity to eliminate Medicaid expansion in one of the 40 states that have approved it.

The Foundation for Government Accountability and Paragon Health Institute, think tanks funded by conservative groups, told Montana lawmakers in September that the program’s enrollment and costs are bloated and that the overloaded system harms access to care for the most vulnerable.

Manatt, a consulting firm that has studied Montana’s Medicaid program for years, then presented legislators with the opposite take, stating that more people have access to critical treatment because of Medicaid expansion. Those who support the program say the conservative groups’ arguments are flawed.

State Rep. Bob Keenan, a Republican who chairs the Health and Human Services Interim Budget Committee, which heard the dueling arguments, said the decision to kill or continue Medicaid expansion “comes down to who believes what.”

The expansion program extends Medicaid coverage to adults with incomes up to 138% of the federal poverty level, or nearly $21,000 a year for a single person. Before, the program was largely reserved for children, people with disabilities, and pregnant women. The federal government covers 90% of the expansion cost while states pick up the rest.

National Medicaid researchers have said Montana is the only state considering shelving its expansion in 2025. Others could follow.

New Hampshire legislators in 2023 extended the state’s expansion for seven years and this year blocked legislation to make it permanent. Utah has provisions to scale back or end its Medicaid expansion program if federal contributions drop.

FGA and Paragon have long argued against Medicaid expansion. Tax records show their funders include some large organizations pushing conservative agendas. That includes the 85 Fund, which is backed by Leonard Leo, a conservative activist best known for his efforts to fill the courts with conservative judges.

The president of Paragon Health Institute is Brian Blase, who served as a special assistant to former President Donald Trump and is a visiting fellow at FGA, which quotes him as praising the organization for its “conservative policy wins” across states. He was also announced in 2019 as a visiting fellow at the Heritage Foundation, which was behind the Project 2025 presidential blueprint, which proposes restricting Medicaid eligibility and benefits.

Paragon spokesperson Anthony Wojtkowiak said its work isn’t directed by any political party or donor. He said Paragon is a nonpartisan nonprofit and responds to policymakers interested in learning more about its analyses.

“In the instance of Montana, Paragon does not have a role in the debate around Medicaid expansion, other than the testimony,” he said.

FGA declined an interview request. As early as last year, the organization began calling on Montana lawmakers to reject reauthorizing the program. It also released a video this year of Montana Republican Rep. Jane Gillette saying the state should allow its expansion to expire.

Gillette requested the FGA and Paragon presentations to state lawmakers, according to Keenan. He said Democratic lawmakers responded by requesting the Manatt presentation.

Manatt’s research was contracted by the Montana Healthcare Foundation, whose mission is to improve the health of Montanans. Its latest report also received support from the state’s hospital association.

The Montana Healthcare Foundation is a funder of KFF Health News, an independent national newsroom that is part of the health information nonprofit KFF.

Bryce Ward, a Montana health economist who studies Medicaid expansion, said some of the antiexpansion arguments don’t add up.

For example, Hayden Dublois, FGA’s data and analytics director, told Montana lawmakers that in 2022 72% of able-bodied adults on Montana’s Medicaid program weren’t working. If that data refers to adults without disabilities, that would come to 97,000 jobless Medicaid enrollees, Ward said. He said that’s just shy of the state’s total population who reported no income at the time, most of whom didn’t qualify for Medicaid.

“It’s simply not plausible,” Ward said.

A Manatt report, citing federal survey data, showed 66% of Montana adults on Medicaid have jobs and an additional 11% attend school.

FGA didn’t respond to a request for its data, which Dublois said in the committee hearing came through a state records request.

Jon Ebelt, a spokesperson for the Montana Department of Public Health and Human Services, also declined to comment. As of late October, a KFF Health News records request for the data the state provided FGA was pending.

In his presentation before Montana lawmakers, Blase said the most vulnerable people on Medicaid are worse off due to expansion as resources pool toward new enrollees.

“Some people got more medical care; some people got less medical care,” Blase said.

Reports released by the state show its standard monthly reimbursement per Medicaid enrollee remained relatively flat for seniors and adults who are blind or have disabilities.

Drew Gonshorowski, a researcher with Paragon, cited data from a federal Medicaid commission that shows that, overall, states spend more on adults who qualified through the expansion programs than they do on others on Medicaid. That data also shows states spend more on seniors and people with disabilities than on the broader adult population insured by Medicaid, which is also true in Montana.

Nationally, states with expansions spend more money on people enrolled in Medicaid across eligibility groups compared with nonexpansion states, according to a KFF report.

Zoe Barnard, a senior adviser for Manatt who worked for Montana’s health department for nearly 10 years, said not only has the state’s uninsured rate dropped by 30% since it expanded Medicaid, but also some specialty services have grown as more people access care.

FGA has long lobbied nonexpansion states, including Texas, Kansas, and Mississippi, to leave Medicaid expansion alone. In February, an FGA representative testified in support of an Idaho bill that included an expansion repeal trigger if the state couldn’t meet a set of rules, including instituting work requirements and capping enrollment. The bill failed.

Paragon produced an analysis titled “Resisting the Wave of Medicaid Expansion,” and Blase testified to Texas lawmakers this year on the value of continuing to keep expansion out of the Lone Star State.

On the federal level, Paragon recently proposed a Medicaid overhaul plan to phase out the federal 90% matching rate for expansion enrollees, among other changes to cut spending. The left-leaning Center on Budget and Policy Priorities has countered that such ideas would leave more people without care.

In Montana, Republicans are defending a supermajority they didn’t have when a bipartisan group passed the expansion in 2015 and renewed it in 2019. Also unlike before, there’s now a Republican in the governor’s office. Gov. Greg Gianforte is up for reelection and has said the safety net is important but shouldn’t get too big.

Keenan, the Republican lawmaker, predicted the expansion debate won’t be clear-cut when legislators convene in January.

“Medicaid expansion is not a yes or no. It’s going to be a negotiated decision,” he said.

This article was produced by KFF Health News, a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF — the independent source for health policy research, polling, and journalism. 

‘A Pressure Campaign’: Beverly Hills Settles After Allegedly Blocking Abortion Clinic

The city of Beverly Hills has agreed to train its employees on abortion clinic protections after local officials interfered with the opening of an abortion clinic in “blatant” violation of state law, according to a proposed settlement to be unveiled Thursday by California Attorney General Rob Bonta.

Bonta’s office said the city’s then-mayor, city attorney, and city manager pressured DuPont Clinic’s landlord last spring to cancel the lease and that city officials also delayed permits to the clinic. They went so far as to warn the building owner that it could be liable for bomb threats and shootings at the medical office building in the wealthy city’s business district.

The Washington, D.C.-based reproductive health provider is one of a handful of clinics nationwide that advertise abortions past 28 weeks of gestation. It had secured a lease and begun preparations to open a second U.S. location in Beverly Hills.

Concerned about potential anti-abortion protests and negative media coverage, city officials “engaged in a pressure campaign under the guise of public safety,” according to Bonta’s complaint. The actions “blatantly violated” state law, Bonta said in the complaint. It’s the state’s first action under the voter-passed initiative known as Proposition 1, which enshrined abortion rights in the state constitution.

“It’s a stark reminder that there are efforts right here in California to undermine reproductive freedom,” Bonta said in an interview with KFF Health News ahead of the announcement. “These are city officials who took an oath to uphold the state constitution and state law, and they did the opposite.”

In signing the agreement, the city did not admit fault or liability. In a statement, Mayor Lester Friedman said the city disagreed with the allegations in the attorney general’s complaint.

“Beverly Hills is already home to medical facilities that offer complete reproductive health services,” Friedman said in a statement. “The city reaffirms and pledges that it did not and will not discriminate against any reproductive healthcare provider and strongly supports a woman’s right to choose.”

As part of the agreement which has been approved by the Beverly Hills City Council and must be approved by the Los Angeles County Superior Court, city officials will be required to train employees about state and federal protections for abortion clinics, create a protocol for handling complaints of potential violations, and appoint a “reproductive justice compliance officer” to manage the training program and materials.

California prohibits abortions past the point of fetal viability, around 24 weeks, except in cases in which the life or health of the woman is at risk. Proposition 1 strengthened reproductive freedom protections in the state constitution.

Approved by an overwhelming majority of statewide voters in 2022, the law says that the state, and by extension local governments, “shall not deny or interfere with an individual’s reproductive freedom in their most intimate decisions, which includes their fundamental right to choose to have an abortion and their fundamental right to choose or refuse contraceptives.”

Bonta said the measure, which at the time was widely regarded as a largely symbolic measure in deeply progressive California, provided a strong legal basis for the state’s case against the city of Beverly Hills and led directly to the settlement agreement.

“There are protections, both constitutional and statutory, that protect reproductive freedom in California,” Bonta said. “Cities need to honor and follow those rights and protections and when they’re not, we will get involved.”

DuPont Clinic had announced plans in October 2022 to expand to the Los Angeles area, according to Bonta’s office. The following month, flyers opposing the clinic’s opening appeared in and around the building.

Beverly Hills police officials later drafted a plan to send a letter to other tenants of the building warning them of the potential security risks, something Bonta said they’d never done with previous properties targeted by protesters.

The city attorney instructed city officials to not issue permits to DuPont until he’d spoken with the clinic about “whether the proposed use is allowed or not.” He later suggested DuPont provide a letter “confirming its intention to comply with California law” as it relates to abortions later in pregnancy.

“They acted differently and inserted themselves in delayed permits and launching a pressure campaign based on the fact that reproductive freedom is at stake,” Bonta said. “They targeted DuPont because of the fact that it provided fully legal reproductive health care.”

During a City Council meeting in April 2023, City Manager Nancy Hunt-Coffey sent an email to council members alerting them of the controversy over the new clinic, just before several activists spoke in opposition. The clinic could, she warned, “be the focus of protests, rallies and unfortunately other more violent actions on occasion.”

“How did this get through?” council member Sharona Nazarian immediately wrote back.

Hunt-Coffey replied: “Well, it’s a private business renting space in a private building.  We don’t have anything in our code that prevents it…”

What followed was a series of attempts by then-mayor Julian Gold, Hunt-Coffey, and the Beverly Hills police chief to stymie the clinic’s opening, Bonta said. Gold and the police chief met with building owner Douglas Emmett Inc., warning that the clinic could become a “lightning rod” for the city and that the landlord would be “responsible” and “liable” if anything were to happen. Gold also raised the possibility of bomb threats and active shooters, and the safety of other tenants in the building.

The clinic never opened.

Bonta said his office is prepared to go after local governments that shirk their responsibility to uphold state laws that protect abortion rights. He also suggested he would support amending state law to levy financial penalties on those who violate it.

Ghosts, Ghouls, and Ghastly Drug Prices in Winning Halloween Haikus

If you dare, feast your eyes on this year’s winners of KFF Health News’ sixth annual Halloween Haiku contest. We received more than four dozen spooky submissions but only a few bubbled to the top of the cauldron. Here’s the winner and the top runners-up, illustrated by Oona Zenda. The judges’ favorites were inspired by blood shortages, high health care costs, and the eye-gouging price of prescription drugs. Keep an eye on KFF Health News’ social media accounts (X; Instagram; and Facebook) for more of our favorites. Enjoy!


1st Place

A black and white cartoon of a witch donating blood. The person taking her blood is Dr. Dracula. Above them is a banner that says: "Dr. Dracula's Blood Drive." Haiku text at the bottom of the image reads: "Vampires don’t scare me. Empty blood shelves, now that’s fear. Roll up, save a life. –Crystal Decker"
(Illustration: Oona Zenda/KFF Health News; Haiku: Crystal Decker)

Vampires don’t scare me. 

Empty blood shelves, now that’s fear. 

Roll up, save a life.

— Crystal Decker 


2nd Place

A black and white cartoon of a scary medical bill frightening a ghoul and a ghost. Below the image, haiku text reads: "What spooks me the most Is not a ghoul or a ghost But steep health care bills. –Sasha Zitter"
(Illustration: Oona Zenda/KFF Health News; Haiku: Sasha Zitter)

What spooks me the most 

Is not a ghoul or a ghost 

But steep health care bills.

— Tom Cook 


3rd Place

A black and white cartoon of a business man, with a name tag that says, "PBM," showing a $1,000 price sheet for a prescription drug. The PBM man scares a thief carrying eyeballs. The haiku text reads: "No, not eye-gouging. My costume is scarier: Pharma price-gouging. –Siri Palreddy"
(Illustration: Oona Zenda/KFF Health News; Haiku: Siri Palreddy)

No, not eye-gouging. 

My costume is scarier: 

Pharma price-gouging.

— Siri Palreddy


While Halloween may be coming to an end, KFF Health News reporting continues year-round. Send us your haikus at any time for possible inclusion in our Morning Briefing: https://kffhealthnews.org/contact-haiku/

Can a $10 Billion Climate Bond Address California’s Water Contamination Problem?

When Cynthia Ruiz turns on her kitchen faucet, she hears a slight squeak before cloudy fluid bursts out of the spout. The water in her Central Valley town of East Orosi is clean enough most of the time to wash dishes, flush toilets, and take showers, but it’s not safe to swallow. Drinking water is trucked in twice a month.

“There are times where the water is so bad you can’t even wash dishes,” said Ruiz, who is advised not to drink the tap water, which is laden with nitrates — runoff from orange and nectarine fields surrounding the town of roughly 400. “We need help to fix our water problem.”

Tucked in a $10 billion climate bond on the November ballot is an earmark to improve drinking water quality for communities such as East Orosi. Proposition 4 would allocate $610 million for clean, safe, and reliable drinking water and require at least 40% be spent on projects that benefit vulnerable populations or disadvantaged communities. But it’s a fraction of what the state says is needed.

While most Californians have access to safe water, roughly 750,000 people as of late October are served by 383 failing water systems, many clustered in remote and sparsely populated areas. A June assessment by the California State Water Resources Control Board pegged the cost of repairing failing and at-risk public water systems at about $11.5 billion.

“We have communities in California that are served drinking water that has been out of compliance with regulatory standards for potent toxins like arsenic for years,” said Lara Cushing, an associate professor in UCLA’s Department of Environmental Health Sciences.

And climate change is eroding people’s access to clean water, she said. “There is kind of a perfect storm, if you will, of compounding hazards.”

Supporters say Proposition 4, to enact the Safe Drinking Water, Wildfire Prevention, Drought Preparedness, and Clean Air Bond Act of 2024, would jump-start upgrades by authorizing grants and loans for local governments to repair water systems contaminated with lead, arsenic, nitrates, or other chemicals tied to cancer, liver and kidney problems, and other serious health issues.

Water priorities vary by region, and the bond would give communities flexibility to address their needs, said MJ Kushner, a policy advocate at the Community Water Center, a statewide nonprofit. “It isn’t a one-size-fits-all solution,” Kushner said.

A taxpayer group opposing the bond says the state will go further into debt on piecemeal projects. It says the state is increasingly addressing its climate-related programs with bonds, which it calls the most expensive way for government to pay for things, rather than within the state budget.

Lawmakers in July added Proposition 4 to the ballot after Democratic Gov. Gavin Newsom, facing a $47 billion deficit, cut $6.6 billion in climate spending from the state budget, according to Department of Finance spokesperson H.D. Palmer. The reductions followed $3.1 billion in climate cuts Newsom and lawmakers enacted in 2023.

Susan Shelley, a spokesperson for the Howard Jarvis Taxpayers Association, said the state has already borrowed billions and that now isn’t the time to add more debt given the deficit.

“If the legislature chose to cut these from the budget, they should not go on the credit card,” Shelley said. “It’s irresponsible.”

According to the nonpartisan Legislative Analyst’s Office, the state has routinely allocated state funds for climate-related programs, with about 15% coming from bonds. The office estimates it would cost taxpayers $400 million a year for the next 40 years to repay the bond — a total of $16 billion.

Since 2000, California voters have approved eight water bonds totaling $27 billion, for projects involving flood management, habitat restoration, drought preparation, and drinking water improvement, according to the Public Policy Institute of California.

Scientists say climate change has led to more severe weather, including devastating floods and droughts; the spread of infectious diseases such as West Nile virus; and earlier deaths from respiratory illnesses. Public health experts add that as climate change worsens, its impact on people’s health will grow more severe and could cost the state more in the long run.

“If we quantify the damages associated with the do-nothing policy, you’ll see that typically, at the end of the day, the bill plus the interest costs are going to be less than the cost if we do nothing,” said Kurt Schwabe, an environmental economics and policy professor at the University of California-Riverside.

If approved, Ruiz hopes Proposition 4 can help East Orosi, a predominantly Latino and low-income community. Though she receives 25 gallons of drinking water twice a month, she sometimes runs out. The last time the 47-year-old drank tap water at home was when she was in high school.

“I don’t think any community anywhere in California should have to wait this long to get clean water,” Ruiz said.

For People With Opioid Addiction, Medicaid ‘Unwinding’ Raises the Stakes

CITRUS COUNTY, Fla. — It was hard enough for Stephanie to get methadone treatment when she moved to Florida from Indiana last year. The nearest clinic was almost an hour’s drive away and she couldn’t drive herself. But at least she didn’t have to worry about the cost of care.

As a parent with young children who was unable to find a job after moving, Stephanie qualified for Medicaid despite Florida’s tight eligibility rules. The state insurance program for people with low incomes or disabilities covers the methadone she needs to reduce her opioid cravings and prevent withdrawal sickness.

For nearly a decade, methadone has helped her hold down a job and take care of her kids. “Just have a normal, really normal, life,” said Stephanie, 39, who asked that her last name be withheld because her two youngest children don’t know about her history of opioid use disorder or that she has been in treatment for opioid addiction. “All the things that some people take for granted.”

So it was devastating for Stephanie when she visited her clinic in summer 2023 and learned she had been dropped from the state’s Medicaid rolls as the program worked to redetermine the eligibility of each enrollee. Suddenly, her methadone prescription cost much more than she could afford.

She panicked, afraid a disruption in care would trigger debilitating withdrawal symptoms like vomiting, fever, cramps, joint pain, and tremors. “That’s the first thing I thought,” she said. “I’m going to be so sick. How am I going to get up and take care of the kids?”

As of September, more than 25 million Americans — including 1.9 million Floridians — had lost Medicaid coverage since the expiration of federal covid-19 pandemic protections in March 2023 that had kept people continually enrolled. Among them were patients in treatment for opioid addiction, such as Stephanie, for whom a loss of coverage could be deadly.

Research shows that, when taken as prescribed, medications for opioid use disorder — such as methadone and a similar medicine, buprenorphine — can reduce dangerous drug use and cut overdose fatalities by more than half. Other studies have found the risk of overdose and death increases when treatment is interrupted.

It is unclear how many people with opioid addiction have lost coverage in the Medicaid disenrollment, known as the “unwinding.” But researchers at KFF, a health information nonprofit that includes KFF Health News, estimate that more than 1 million low-income Americans depend on the federal-state Medicaid program for lifesaving addiction care.

At Operation PAR — a nonprofit addiction treatment provider from which Stephanie and thousands of others along Florida’s Gulf Coast get care — the percentage of opioid treatment patients with Medicaid has dropped from 44 to 28 since the unwinding began last year, the organization said.

Dawn Jackson, who directs Operation PAR’s newest clinic, about an hour north of Tampa in the small Citrus County city of Inverness, said it has been a struggle trying to stretch limited grant dollars to cover the recent surge of uninsured patients.

“There’s been sleepless nights,” Jackson said. “We’re saving lives — we’re not handing out Happy Meals here.”

A photo of a woman placing her methadone into a lockbox.
Stephanie puts a week’s worth of methadone doses directly into a lockbox, in accordance with facility pickup rules. She travels almost an hour to reach the nonprofit Operation PAR clinic in Inverness, Florida, and relies on Medicaid coverage to pay for the treatment.(Stephanie Colombini/WUSF)

Methadone and buprenorphine are considered the gold standard of care for opioid addiction. The drugs work by binding to the brain’s opioid receptors to block cravings and withdrawal symptoms without making a person feel high. Treatment reduces illicit drug use and the accompanying overdose risk.

However, few Americans who could benefit from the medicines actually receive them: The latest federal data shows that in 2021 only about 1 in 5 people who needed the medicines got them. The low numbers offer a sharp contrast to the record-high drug overdose epidemic, which killed nearly 108,000 Americans in 2022 and is driven primarily by opioids.

Zachary Sartor, a family medicine doctor in Waco, Texas, who specializes in addiction treatment, described the effect of such medications as “nothing short of remarkable.”

“The evidence in the medical literature shows us that things like employment and quality of life overall increase with access to these medications, and that definitely bears out with what we see in the clinic,” Sartor said. “That benefit just seems to grow over time as people stay on medications.”

Sartor, who works at a safety net clinic, prescribes buprenorphine, and most of his patients are uninsured or on Medicaid. Some are among the 2.5 million Texans who lost coverage during the state’s unwinding, he said, causing their out-of-pocket buprenorphine costs to abruptly rise as much as fourfold.

The loss of coverage — which also cuts access to health care beyond addiction treatment — often requires patients to make risky trade-offs.

Sartor said that can mean patients having to choose between medications to treat their addiction and drugs for other medical conditions. “You start to see the cycle of patients having to ration their care,” he said.

Many people who lost their insurance in the Medicaid unwinding have since seen it reinstated. But even a brief disruption in care is serious for someone with opioid use disorder, said Maia Szalavitz, a journalist and an author who writes about addiction.

“If you want to save people’s lives and you have a lifesaving medication available, you don’t interrupt their access to health care,” Szalavitz said. “They end up in withdrawal and they end up dying.”

When Stephanie lost her Medicaid coverage last year, Operation PAR was able to subsidize her out-of-pocket methadone costs, so she paid only $30 a week. That was inexpensive enough for her to stick with treatment for the six months it took to restore her Medicaid coverage.

But the patchwork of federal and state grants that Operation PAR uses to cover uninsured patients doesn’t always meet demand, and waiting lists for subsidized methadone treatment are not uncommon, said Jackson, who directs the clinic in Citrus County.

Even before the Medicaid unwinding, about 13% of people younger than 65 in Florida were uninsured, one of the highest rates in the country, according to census data. Florida is also one of 10 states that have not expanded Medicaid for low-income adults.

Jon Essenburg, chief business officer at Operation PAR, said a recent infusion of opioid settlement money wiped out the group’s waiting lists, at least for now. But he said settlement dollars — Florida expects to receive $3.2 billion over 18 years from opioid manufacturers and distributors — are not a long-term solution to persistent coverage gaps, which is why stabler reimbursement sources like Medicaid can help.

“Turning people away over money is the last thing we want to do,” Jackson said. “But we also know that we can’t treat everybody for free.”

Stephanie is grateful she never had to go without her medicine.

“I don’t even want to think about what it would have been like if they wouldn’t have worked with me and helped me with the funding,” Stephanie said. “It would have been a very dark rabbit hole, I’m afraid.”

Kim Krisberg is a contributing writer for Public Health Watch and co-leads the reporting project The Holdouts. Stephanie Colombini is a reporter for WUSF’s Health News Florida project.

This article was produced by KFF Health News, a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF — the independent source for health policy research, polling, and journalism. 

Toddler’s Backyard Snakebite Bills Totaled More Than a Quarter Million Dollars

This spring, a few days after his 2nd birthday, Brigland Pfeffer was playing with his siblings in their San Diego backyard.

His mother, Lindsay Pfeffer, was a few feet away when Brigland made a noise and came running from the stone firepit, holding his right hand. She noticed a pinprick of blood between his thumb and forefinger when her older son called out, “Snake!”

“I saw a small rattlesnake coiled up by the firepit,” she said.

Pfeffer called 911, and an ambulance transported Brigland to Palomar Medical Center Escondido.

The Medical Procedure

When they arrived, Brigland’s hand was swollen and purple.

Antivenom, an antibody therapy that disables certain toxins, is usually administered via an intravenous line, directly into the bloodstream. But emergency room staffers struggled to insert the IV.

“They had so many people in that room trying his head, his neck, his feet, his arms — like, everything to find a vein,” Pfeffer said.

A sad-looking young boy lies in a hospital bed with a bandage on his neck and electrodes on his chest.
Brigland during his hospital stay, after he was bitten by a rattlesnake in his San Diego backyard. After problems administering a starting dose of antivenom, emergency room staffers found a way that worked and stabilized the 2-year-old. He received 30 total vials of the antivenom Anavip. (Lindsay Pfeffer)

Still unable to start the antivenom, a doctor asked for her permission to try drastic measures. “Just get something going,” she recalled pleading.

It worked. Using a procedure that delivers medicine into the bone marrow, the medical team gave Brigland a starting dose of the antivenom Anavip.

He was transferred to the pediatric intensive care unit at Rady Children’s Hospital, where he received more Anavip.

The swelling that had spread to his armpit slowly decreased. A couple of days later, he left the hospital with his grateful parents.

Then the bills came.

The Final Bill

$297,461, which included two ambulance rides, an emergency room visit, and a couple of days in pediatric intensive care. Antivenom alone accounts for $213,278.80 of the total bill.

The Billing Problem: The High Cost of Antivenom

The Centers for Disease Control and Prevention estimates venomous snakes bite 7,000 to 8,000 people in the United States every year. About five people die. That number would be higher, the agency says, if not for medical treatment.

Many snakebites happen far from medical care, and not all emergency rooms keep costly antivenom in stock, which can add big ambulance bills to already expensive care.

It often takes more than a dozen vials, typically costing thousands per vial, to treat a snakebite. The median number per patient is 18 vials, said Michelle Ruha, an emergency room doctor in Arizona and a former president of the American College of Medical Toxicology.

Manufacturing, which hasn’t fundamentally changed since antivenom was developed more than a century ago, does not explain the high price. Venomous creatures are milked, then a small, non-harmful amount of toxin is injected into animals like horses or sheep. Antibodies are extracted from their blood and processed to make antivenom.

Why the high price? One explanation is that hospitals mark up products to balance overhead costs and generate revenue.

Brigland received Anavip at two hospitals that charged different prices.

Palomar, where emergency staffers treated Brigland, charged $9,574.60 per vial, for a total of $95,746 for the starting dose of 10 vials of Anavip.

Rady, the largest children’s hospital on the West Coast, charged $5,876.64 for each vial. For the 20 vials Brigland received there, the total was $117,532.80.

Neither hospital responded to requests for comment.

Those charges are “eye-popping,” said Stacie Dusetzina, who is a professor of health policy at Vanderbilt University Medical Center and reviewed the bills at the request of KFF Health News. “When you see the word ‘charges,’ that’s a made-up number. That isn’t connected at all, usually, to what the actual drug cost.”

For instance, Medicare — the government program for those who are at least 65 or disabled — pays about $2,000 for a vial of Anavip. On average, Dusetzina said, that is the price hospitals pay for it.

A fenced-in backyard shows a covered pool, firepit with seating, a pool chair, and toys.
Since Brigland’s rattlesnake bite, the Pfeffer family has installed snake fencing around the yard.(Ariana Drehsler for KFF Health News)

Leslie Boyer, a doctor and toxicology researcher, helped found a group that was instrumental in developing Anavip, as well as the other available snake antivenom, CroFab, which dominated the market for decades. In 2015, she published an editorial in the American Journal of Medicine breaking down the “true” cost of antivenom. (Boyer declined to comment for this article.)

Using cost data collected from factory supervisors, animal managers, hospital pharmacists and other sources, Boyer developed a model for a hypothetical antivenom, at a final cost of $14,624 per vial. She found the cost of venom, included in that total, was just 2 cents. Manufacturing accounted for $9 of the $14,624 total.

More than 70% of the price tag — $10,250 — is attributable to hospital markups, her research showed.

Another explanation for antivenom’s high cost is a lack of meaningful competition. Anavip entered the market in 2018 as the only competitor to CroFab. But its makers settled a patent infringement lawsuit with CroFab’s maker, requiring the makers of Anavip to pay royalties until 2028.

Anavip debuted at a retail price of $1,220 per vial. Boyer noted that the price later rose to cover the manufacturers’ millions of dollars in legal costs.

A woman sits on a concrete bench with her arm around a young boy standing on the bench beside her. Both are smiling
“He’s very, very lucky,” Lindsay Pfeffer says. “He wasn’t a mama’s boy, but now he definitely is one.” (Ariana Drehsler for KFF Health News)

The Resolution

The insurer covering Brigland — Sharp Health Plan, which did not respond to requests for comment — negotiated down the antivenom charges by tens of thousands of dollars.

The cost was mostly covered by insurance. Brigland’s family paid $7,200, their plan’s out-of-pocket maximum.

Insurance did not pay all the claims, including one ambulance bill. Pfeffer said she received a letter this summer indicating they owe an additional $11,300 for Brigland’s care. While the landmark No Surprises Act protects patients from many out-of-network bills in emergencies, the law controversially exempted bills for ground ambulances.

Brigland’s hand healed, though nerve damage and scar tissue have left his right thumb less dexterous. He is now left-handed.

“He’s very, very lucky,” Pfeffer said.

The family has since installed snake fencing around the yard.

A young boy runs outside with both arms outstretched.
Brigland’s hand healed, though nerve damage and scar tissue have left his right thumb less dexterous. He is now left-handed.(Ariana Drehsler for KFF Health News)

The Takeaway

There’s a saying in toxicology: Time is tissue. If bitten by a snake, “get to medical care,” Ruha said.

Not all emergency rooms have antivenom, and there are no online resources identifying which ones do. Ruha recommends going to a large hospital, which is more likely to have antivenom in stock than free-standing emergency rooms.

When the bill comes, be ready to negotiate, Dusetzina said. Providers know their charges are high and may be willing to take less.

You can compare the charges against average prices using cost estimation tools like Fair Health Consumer or Healthcare Bluebook.

Bill of the Month is a crowdsourced investigation by KFF Health News and The Washington Post’s Well+Being that dissects and explains medical bills. Since 2018, this series has helped many patients and readers get their medical bills reduced, and it has been cited in statehouses, at the U.S. Capitol, and at the White House. Do you have a confusing or outrageous medical bill you want to share? Tell us about it!

This article was produced by KFF Health News, a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF — the independent source for health policy research, polling, and journalism. 

Florida Medical Device Maker Exactech Declares Bankruptcy

Exactech, a Florida device manufacturer that faces more than 2,000 state and federal lawsuits from patients who allege the company sold defective hip and knee implants, filed for bankruptcy protection Tuesday.

The Gainesville-based company said in a statement it was restructuring and would be sold to an investor group of private equity and “alternative asset” firms, which would provide about $85 million in financing to fund the company’s operations.

Darin Johnson, Exactech’s president and chief executive officer, said in the statement that the device company faces “unsustainable liabilities associated with knee and hip litigation related to the packaging recalls we voluntarily initiated between 2021 and 2022.” The company said it would continue to operate during the bankruptcy proceedings.

“We take our commitment to patient well-being very seriously and have provided substantial out-of-pocket patient reimbursements and surgeon support for related expenses,” Johnson said.

The bankruptcy proceedings in federal court in Delaware will pause the lawsuits from patients seeking damages.

The surprise action dismayed lawyers representing injured patients.

“Exactech’s bankruptcy filing is a slap in the face to all the joint-implant patients and doctors who trusted the company. A medical device company that sells products for implantation in the human body has a special responsibility for public health,” said Joe Saunders, a Florida attorney who has sued the company on behalf of injured patients.

Saunders said the bankruptcy “serves to cover up public disclosure of the company putting profits ahead of safety.”

Injured patients were expecting one of the first jury trials against the company to begin in December in the circuit court in Alachua County, Florida. But the bankruptcy filing “stops the public trial and conceals the truth about the company’s conduct,” Saunders said.

Exactech, which grew over three decades from a small device manufacturer into a global entity, was the subject of a KFF Health News investigation published in October 2023.

The investigation found that, in hundreds of instances, the company took years to report adverse events to a federal database that tracks device failures.

Many of the lawsuits allege that the company’s knee and hip implants had an “unacceptable failure and complication rate.” Exactech has denied the allegations, and the company had no comment on the lawsuits.

Exactech began a series of recalls of artificial knees, hips, and ankles, starting in August 2021. Exactech initially blamed a packaging defect dating back as far as 2004 for possibly causing the plastic component to wear out prematurely in about 140,000 implants.

The KFF Health News analysis of more than 300 pending cases in Alachua County found that surgeons removed about 200 implants after less than seven years, far sooner than the 15 to 20 years these products typically last.

“I’m so angry. How did they [Exactech] think they are not responsible for this?” said Sue Sacher, 76, a New Jersey resident. She said she had her right knee replaced with an Exactech implant in 2006 and the left one done three years later, both at the Hospital for Special Surgery in New York.

Since then, she’s had both implants replaced.

This article was produced by KFF Health News, a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF — the independent source for health policy research, polling, and journalism. 

‘Dreamers’ Can Enroll in ACA Plans This Year — But a Court Challenge Could Get in the Way

When open enrollment for the Affordable Care Act, or Obamacare, starts nationwide this week, a group that had previously been barred from signing up will be eligible for the first time: The “Dreamers.” That’s the name given to children brought to the United States without immigration paperwork who have since qualified for the Deferred Action for Childhood Arrivals program.

Under a Biden administration rule that has become contentious in some states, DACA recipients will be able to enroll in — and, if their income qualifies, receive premium subsidies for — Obamacare coverage. The government estimates that about 100,000 previously uninsured people out of the half-million DACA recipients might sign up starting Nov. 1, which is the sign-up season start date in all states except Idaho.

Yet the fate of the rule remains uncertain. It is being challenged in federal court by Kansas and 18 other states, including several in the South and Midwest, as well as Montana, New Hampshire, and North Dakota.

Separately, 19 states and the District of Columbia filed a brief in support of the Biden administration rule. Led by New Jersey, those states include many on the East and West coasts, including California, Colorado, Nevada, New Mexico, New York, Oregon, and Washington.

The rule, finalized in May, clarifies that those who qualify for DACA will be considered “lawfully present” for the purpose of enrolling in plans under the ACA, which are open to American citizens and lawfully present immigrants.

“The rule change is super important as it corrects a long-standing and erroneous exclusion of DACA recipients from ACA coverage,” said Nicholas Espíritu, a deputy legal director for the National Immigration Law Center, which has also filed briefs in support of the government rule.

President Barack Obama established DACA in June 2012 by executive action to protect from deportation and provide work authorization to some unauthorized residents brought to the U.S. as children by their families if they met certain requirements, including that they arrived before June 2007 and had completed high school, were attending school, or were a veteran.

States challenging the ACA rule say it will cause administrative and resource burdens as more people enroll, and that it will encourage additional people to remain in the U.S. when they don’t have permanent legal authorization. The lawsuit, filed in August in U.S. District Court for the District of North Dakota, seeks to postpone the rule’s effective date and overturn it, saying the expansion of the “lawfully present” definition by the Biden administration violates the law.

On Oct. 15, U.S. District Judge Daniel Traynor, who was appointed in 2019 by then-President Donald Trump, heard arguments in the case.

Plaintiff states are pushing for fast action, and it is possible a ruling will come in the days before open enrollment begins nationwide in November, said Zachary Baron, a legal expert at Georgetown Law, who helps manage the O’Neill Institute Health Care Litigation Tracker.

But the outlook is complicated.

For starters, in a legal battle like this, those who file a case must demonstrate the harm being alleged, such as additional costs the rule will force the states to absorb. There are only about 128 DACA recipients in North Dakota, where the case is being heard, and not all of them are likely to enroll in ACA insurance.

Furthermore, North Dakota is not among the states that run their own enrollment marketplace. It relies on the federal healthcare.gov site, which makes the legal burden harder to meet.

“Even though North Dakota does not pay any money to purchase ACA health care, they are still claiming somehow that they are harmed,” said Espíritu, at the immigration law center, which is representing several DACA recipients and CASA, a nonprofit immigrant advocacy group, in opposing the state efforts to overturn the rule.

During the hearing, Traynor focused on this issue and noted that a state running its own marketplace might be a better venue for such a case. He ordered the defendants to present more information by Oct. 29 and for North Dakota to respond by Nov. 12.

On Monday, the judge denied a motion from the federal government asking him to reconsider his order requiring it to provide the state with the names of 128 DACA recipients who live there, under seal, for the purpose of helping calculate any financial costs associated with their presence.

In addition, it’s possible the case will be transferred to another district court, but that could lead to delays in a decision, attorneys following the case said.

The judge also could take a number of directions in his decision. He could postpone the rule’s effective date, as requested in part of the lawsuit, preventing DACA recipients from enrolling in Obamacare while the case is decided. Or he could leave the effective date as it stands while the case proceeds.

With any decision, the judge could decide to apply the ruling nationally or limit it to just the states that challenged the government rule, Baron said.

“The approach taken by different judges has varied,” Baron said. “There has been a practice to vacate some regulatory provisions nationwide, but a lot of judges, including justices on the Supreme Court, also have cited concerns about individual judges being able to affect policy this way.”

Even as the case moves along, Espíritu said his organization is encouraging DACA recipients to enroll once the sign-up period begins nationally in November.

“It’s important to enroll as soon as possible,” he said, adding that organizations such as his will continue to monitor the case and give updates if the situation changes. “We know that getting access to good affordable health care can be transformative to people’s lives.”

DACA was created in 2012 by then-President Barack Obama. This case challenging the rule is wholly separate from another case, brought by some of the same states as those opposed to the ACA rule, seeking to entirely end the DACA program. That case is currently in the appeals process in federal court.

This article was produced by KFF Health News, a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF — the independent source for health policy research, polling, and journalism. 

An Arm and a Leg: Can Racism Make You Sick? 

For the past four years, journalist Cara Anthony, a KFF Health News Midwest correspondent, has been reporting on the public health effects of racism, violence, and intergenerational trauma in a small Missouri town. The result: a new documentary and podcast series called “Silence in Sikeston.” 

Cara Anthony sits down with “An Arm and a Leg” host Dan Weissmann to talk about the health effects of breaking silence and how it could help heal intergenerational trauma.  

Note: “An Arm and a Leg” uses speech-recognition software to generate transcripts, which may contain errors. Please use the transcript as a tool but check the corresponding audio before quoting the podcast.

Dan Weissmann: Hey there. We’re doing something a little different this time. This story is not about the cost of healthcare, not in dollars and cents, and it’s actually not about doctors or hospitals or medicines, but it’s a story about health and about sickness and injury and about how people can care for each other and help each other heal.

And, I will tell you, it is a tough story. This is a story about racism, violence, and ongoing intergenerational trauma. So, you know, however you might need to take care of yourself around a story like this, I want you to do that. But this is a story I’ve been hearing about and looking forward to talking about for years.

Cara Anthony is a Midwest correspondent with our partners at KFF Health News, and she’s been working on a documentary and a podcast about this story since 2020. And now her work, Silence in Sikeston, it’s out in the world. PBS aired the documentary in September and the fourth and final podcast episode came out just last week.

They connect the stories of two young Black fathers who were killed in the small town of Sikeston, Missouri, almost 80 years apart. Cleo Wright was lynched by a white mob in 1942. They dragged him from the jail to the Black section of town, and they doused his body with gasoline and lit the fire in front of a church on a Sunday morning.

In 2020. Denzel Taylor was killed by Sikeston police, he was unarmed. Police fired at least 18 shots. So the podcast Silence in Sikeston, it explores racism, violence, and systemic bias as public health problems, literally making people sick across whole communities and across generations. And it asks, among other things, can breaking silences be healing?

This is “An Arm and a Leg,” and usually it’s a show about why healthcare costs so freaking much and what we can maybe do about it. I’m Dan Weissmann. I’m a reporter. I’m thankful to get to talk with Cara Anthony about her work. Cara, thank you so much for joining us.

Cara Anthony: Thanks for having me, Dan.

Dan Weissmann: My pleasure. How, how did you become aware of these stories and how did you decide to pursue them?

Cara Anthony: In 2020, I was sitting on my couch, watching the world erupt, you know, watching what was happening to George Floyd in Minneapolis. And I really wanted to join the conversation that was happening. And I decided, you know what? While the world was paying attention to Minnesota at that time, I knew that there were other stories out there. And so, I’m a Midwest correspondent for KFF Health News. And I thought I should take a look at what’s going on in Missouri. And I decided really to look at rural Missouri and Black communities in rural Missouri and kind of stumbled upon a part of the state known as the Boot Heel. That’s Southeast Missouri. It’s called the Boot Heel because that part of Missouri kind of sticks out like a boot and um, ended up in Sikeston, made a call in 2020 to the city’s first Black clerk there. And she said, look, if you want to know what it’s like to be Black in the Boot Heel, you need to have a conversation with my grandmother, Mabel Cook. And I said, okay, you know, pitched it to my editors. I thought it would maybe be a 900 word story and it ended up being a four year journey. And here we are now.

Dan Weissmann: Wow. Okay. How did you pitch this story initially? I mean, you are working then as now for KFF Health News. How did you pitch this story? ‘Like, well, so here’s a health story.’ How was that part of the pitch?

Cara Anthony: Yeah, I mean, I told my editor, look, the whole country is looking at police violence and police killings, but also I knew that our country had lived through a lynching era, and I just said, look, I want to write a story about racial trauma. You know, at the time I was looking for signs of like PTSD and people who were still living there and had witnessed this lynching that happened in 1942. And my editor you know, at first she was like, okay, you know, go ahead. Why don’t you go down there and see what you can find? And the more I started talking to people, the more I realized that this informed their lives, how they related to each other, how they related to even law enforcement today, and that’s when I decided, ‘you know what? This isn’t just a story about history, but rather we need to look at police killings and police violence today.’ And that’s when I decided to look into the story of Denzel Taylor.

Dan Weissmann: And so his story, his death had happened just a few months before you made your first phone call to Sikeston. It didn’t become part of your reporting project until later.

Cara Anthony: There were a few local news headlines about what happened to Denzel, but mostly, you know, people ignored it. There was a lot of silence around his death as well. And that’s largely because, Dan, people don’t – and still today – people don’t feel comfortable talking about this stuff. It’s hard. Um, for some people they feel as though their, their lives could be in jeopardy. A part of the reason why we call it Silence in Sikeston, you know – at first I was calling it, you know, Black in the Boot Heel. I thought that’s a clever name. And then I thought that’s, that’s just wrong. This is deeper. People are holding in stories and I’m getting more no’s than I am yeses. And I said, you know, I just told my editor, I said, we have to call this Silence in Sikeston.

Dan Weissmann: Like, what reasons did people give for not wanting to talk to you? Why, and, and beyond what people said, like, why do you think so many people didn’t want to talk to you?

Cara Anthony: You know, I think there’s a huge fear still. You know, Sikeston is a town of roughly 16,000 people. And, I mean, if you know small town politics, you understand what it’s like to be in a smaller city. Everybody knows everybody, right? Also damage had been done there before I arrived and decided to start, you know, asking questions and wanting to tell stories. People really feared retaliation because of racial trauma and because they didn’t want their family member to be next. You also have just the weight of what happened to Cleo, right? You know, this is a Black man who was lynched on a Sunday morning in front of the entire community. You know, they drug Cleo Wright to the Black section of town to make a point. That is something that sticks with you. So Black people had their reasons for not wanting to talk other stories, you know, um, things that had happened within the Black community that made them fearful, but also, you know, white residents in town didn’t want the city to look bad. Every town has secrets and, um, some of these secrets need to be unearthed and discussed because, um, they can make you sick if not.

Dan Weissmann: Yeah, we’ll get right to that. What did you learn about the health costs of living with violence in silence?

Cara Anthony: In episode three of the podcast, we talk about something called anticipatory stress, which means like you’re always waiting for the other shoe to drop. So maybe you know, the next generation, they’re like, okay, we’re okay.

Y’all are, you know, we’re new here. Um, but then you have your mothers and fathers and grandmothers who are worried about, well, we want to keep you safe and that is stressful. And we know that, uh, stress can wreak havoc on your body. You could start to see the physical manifestations of that show up as cancer, show up as diabetes, show up with heart issues, anxiety, depression, the list goes on and on. You can even become suicidal. That is hard to say, but when you feel like you have no one to talk to, it’s a terribly isolating feeling, Dan.

And as I kept talking to people in Sikeston that anticipatory stress, that kept coming up.

Dan Weissmann: The anticipatory stress kept coming up. Like what did people say?

Cara Anthony: I mean, mothers were genuinely concerned, genuinely concerned about their children, especially when we think about police violence and police killings. Now in 2020, Denzel Taylor was a young Black father who was shot and killed by Sikeston PD. And even though people really didn’t talk about it openly, the body cam footage appeared on Facebook. People did trade around the video and saw what happened. People whispered about it in the same way people whispered about what happened to Cleo Wright when he was lynched in 1942. And so, they were concerned. I don’t want that to be me. I don’t want that to be my child or grandchild. and this is not just a story that is unique to Sikeston. And let me say that, you know, police violence is is everywhere. Police killings occur across this country. You know, and back in 2020, there was a stat out there that said that Black men had a one in 1000 chance of being killed by the police. And so yeah, anticipatory stress is a huge issue that kept coming up in the reporting and one that we should be talking about even more.

Dan Weissmann: Coming up: As Cara Anthony reported on Silence in Sikeston, her dad broke a long silence of his own. That’s next.

An Arm and a Leg is a co-production of Public Road Productions and KFF Health News. That’s a national, nonprofit newsroom that produces in-depth journalism about health issues — including Cara Anthony’s “Silence in Sikeston.” Now, back to my interview with Cara Anthony about her work.

Dan Weissmann: One thing you do in the podcast is you, um, explore how some of these questions have come up in your own family. And you bring us some intimate conversations and some really tough conversations. Um, what, especially, as you were reporting this story, your dad broke a silence of his own to you. Um, it turned out that years before you started this reporting, he had looked into the death of his own uncle, Leemon, because he’d had a sense, your dad, that the stories he’d gotten from the family weren’t the whole story. And after you had started reporting the story, he showed you what he’d found. You sat together in his home office, and he showed you his uncle’s death certificate saying Leemon Anthony was shot by police and lists the cause of his death as homicide, but nobody was charged with a crime.

Wilbon Anthony: It says, shot by police or resisting arrest. Well, no one ever, I never heard this in my, uh, whole life. Then item 21 enlisted causes of death: accidental suicide or homicide? And enlisted that item as homicide.

Cara Anthony: Okay. Okay. Um, that’s a lot. I need to pause.

Dan Weissmann: So you let us hear your response to that and saying ‘that’s a lot.’ And then you let us hear the click of a tape recorder stopping. Can you tell us more about that moment and what happened next for you?

Cara Anthony: Yeah. I mean, look, my uncle was killed by the police in 1946 in West Tennessee. For most of my father’s life and also mine we were told that he was killed in a wagon and mule accident. You know, and so hearing the facts around what happened to him seeing my dad pull up what I would call almost like a pain diary that was just sitting on his desktop of his computer, where he was just filing away things, collecting things, newspaper clippings, Leemon’s death certificate. Um, there’s a lot to take in in that moment, and I’m still grappling with that and what that means, and how I will even share that story with my daughter one day. But yeah, it’s a ton of process and our family is still processing it. You know, I think the next step for us is trying to go and find where Leemon Anthony is buried in Tennessee for some closure now that we know what actually happened to him.

Dan Weissmann: Why do you think your dad chose that moment to share what he learned with you?

Cara Anthony: He saw me, you know, diving into these stories in Sikeston and I don’t know if he always thought that I was particularly interested in our family story, if I cared, you know, um, we would go to family reunions and I was a kid, you know, so I would want to go out and go bowling or go to the arcade or do whatever my younger cousins were doing. And I heard whispers of people talking about Leemon at family reunions, but I never really stopped to pay attention. And I think as he saw me traveling back and forth to Sikeston and bringing home these stories – because we lived together while I was reporting this out– I think he really saw it as an opportunity for us to have a difficult conversation about our family’s history and our family’s story. And I’m really glad that he did because it changed even my reporting approach once I realized what my dad was keeping to himself for all these years.

Dan Weissmann: Has there been a change in your relationship with your dad?

Cara Anthony: Yeah we’re talking about more and same goes for my mom. You know, my mom just called me last night with a story, because she, we took a family trip down to Sikeston, um, about a year and a half into my reporting and my parents grew up in the rural South. And so I said, well, let’s stop at a cotton field, you know, wouldn’t that be fun? And they’re just like, ‘okay.’ You know being a Black American, I understand that cotton was weaponized and, you know, my enslaved ancestors received nothing for their labor. Now I’m totally aware of that, but I had never been to a cotton field and I thought it would be a good field trip for my daughter and, you know, my mom and I were talking about that last night and she said, well, did you know that, um, sometimes my grandfather when it was cold outside, he would chop down the entire stock of cotton and bring it inside of our home and place it in front of our wood burning stove so that we could pick cotton inside of our house so that we wouldn’t be too cold, you know, um, during the winter months and I’m just like ‘what?’ It’s like she’s been working like she was a grown woman since she was an elementary school student. And that was really hard for me to think about, to process. I was really sad when she shared that story with me. I realized that it informed how she raised me and my siblings and even how she interacts with my daughter. And so, I was grateful, but also just emotionally devastated because these are absolutely necessary conversations and I always think about now, like, what if I hadn’t raised my hand to go to Sikeston? Would I have missed all of this? So I’m really grateful and thankful that they’re now opening up and sharing these stories as tragic and as horrific as they may be. These are necessary conversations.

Dan Weissmann: You’ve mentioned here and you mentioned in the podcast that you have a kind of ongoing inner conversation with yourself about as a parent, how do you share and when do you share, um, these stories with your daughter. You hear a conversation that you have with your daughter that’s, you know, I think an example of aiming to, um, create space for closer communication. I’ll play it here.

Cara Anthony: Sit over, come over here, come over here, seriously, do you remember a couple of weeks ago when you were crying and I told you to fix your what?

Lily: Face.

Cara Anthony: That wasn’t very nice. I want you to know that we. Can talk about things, because when we talk about things, we often feel better, right?

Lily: Yes.

Cara Anthony: Can we keep talking to each other while you grow up, in life, about stuff, even hard stuff?

Lily: Like, doing 100 math facts?

Cara Anthony: Sure. That’s the biggest thing in your life right now, but yes, all of that. We’re just going to keep talking to each other. So can we make a promise?

Lily: Yeah.

Dan Weissmann: It’s such a lovely conversation and you choose to end that second episode with that. Why is that the end of that episode?

Cara Anthony: First of all, I just want to point out that I hope everyone heard like the hesitation in my daughter’s voice when I said, can we make a promise, like building trust is like so important and I think we ended the episode that way, partly because Lily represents the next generation that will come up and, and lead us, but also because it’s just raw and real. And I don’t want my daughter to ‘hush and fix her face,’ but rather to express her emotions, say what’s wrong if something’s wrong. And so we wanted people to feel the authenticity of that moment and to have people understand that it starts young and it starts now. And I’m not going to get it right all of the time, but a professor who’s in that episode. Her name is Aiesha Lee. She’s at Penn State University.

And one of the quotes that she gives us is so profound where she says, and I’m paraphrasing a little here but she says like, each generation has like a piece of the work to do because these issues and problems have compounded over generations, over time. And so, you know, even a small conversation like that and what we’re doing now here, Dan, this is a piece of the work, you know, and if we think about it like that, that really gives me a lot of peace, knowing that, okay, I can’t fix it overnight. I can’t do it all, but I can at least do my part and that’s what we’re trying to do.

Dan Weissmann:Near the end of the documentary, right, there’s — there’s a ceremony, essentially in Sikeston of people filling jars with soil– to the kind of museum and Institution that Bryan Stevenson created in Montgomery, Alabama. It’s called the Legacy Museum, is that right? It connects these hundreds of years of history from enslavement, mass incarceration, including lynching. And there’s an exhibit there, hundreds of jars filled with soil and each one is from a place where lynchings happened. And so here we see people from Sikeston filling jars to send there. As I saw it, you know, in the documentary, the way that scene is presented. You see people smiling. Um, you know, you see people experiencing some kind of satisfaction. Satisfaction is not the right word. I mean what is behind those smiles…

Cara Anthony: It’s redemption. It’s redemption. You know, it’s like, um, early on in the process, I was watching a lot of different, um, TED talks about communities that had similar, you know, racial reckoning experiences. And I ran across one that talked about The three R’s of history, which is, you know, the three R’s are recognize, repair, redeem. You have to recognize what happened, you know, in order to repair it. So you have to say, yes, you are wounded. Now let’s figure out how to fix the wound so that you can have days of redemption and move forward. And that’s really what you saw in that particular scene but that doesn’t mean the work is complete. And there are people that don’t want a marker for Cleo Wright in the city, even today. So let’s not, you know– I just don’t want to paint a picture of perfection or that everything is fine now, because there’s still so much that needs to be done. that’s my biggest thing with this, is that this is a starting point. Um, we’re not at the finish line yet.

Dan Weissmann: Cara, thank you so much.

Cara Anthony: Thank you. [music]

Dan Weissmann: Cara Anthony is Midwest Correspondent for KFF Health News. You can find the documentary Silence in Sikeston on the PBS app, or on YouTube.

Silence in Sikeston, the podcast, is available — wherever you get your podcasts. We’ll have a link wherever you’re listening.

We’ll be back in a few weeks with a story I think you’ll definitely want to hear. Holden Karau has been building a tool that’ll let you use artificial intelligence to write appeals when health insurance denies a claim. Her tool is called Fight Health Insurance, and the slogan is: Make your insurance company cry, too.

That’s next time. Till then, take care of yourself.

This episode of An Arm and a Leg was produced by me, Dan Weissmann, with help from Emily Pisacreta — and edited by Ellen Weiss.

Adam Raymonda is our audio wizard. Our music is by Dave Weiner and Blue Dot Sessions. Gabrielle Healy is our managing editor for audience.

Lynne Johnson is our operations manager. Bea Bosco is our consulting director of operations.

An Arm and a Leg is produced in partnership with KFF Health News. That’s a national newsroom producing in-depth journalism about healthcare in America and a core program at KFF, an independent source of health policy research, polling, and journalism.

Zach Dyer is senior audio producer at KFF Health News. He’s editorial liaison to this show.

And thanks to the Institute for Nonprofit News for serving as our fiscal sponsor. They allow us to accept tax-exempt donations. You can learn more about INN at INN.org.

Finally, thank you to everybody who supports this show financially. You can join in any time at arm and a leg show, dot com, slash: support. Thank you so much for pitching in if you can — and, thanks for listening.


“An Arm and a Leg” is a co-production of KFF Health News and Public Road Productions.

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This article was produced by KFF Health News, a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF — the independent source for health policy research, polling, and journalism. 

Vance Wrongly Blames Rural Hospital Closures on Immigrants in the Country Illegally

“We’re bankrupting a lot of hospitals by forcing these hospitals to provide care for people who don’t have the legal right to be in our country.”

Sen. JD Vance (R-Ohio) during a Sept. 17 rally

During a recent presidential campaign rally in Wisconsin, Sen. JD Vance (R-Ohio) was asked how a Trump administration would protect rural health care access in the face of hospital closures, such as two this year in Eau Claire and Chippewa Falls.

In response, he turned to immigration.

“Now, you might not think that rural health care access is an immigration issue,” said Vance, former President Donald Trump’s running mate. “I guarantee it is an immigration issue, because we’re bankrupting a lot of hospitals by forcing these hospitals to provide care for people who don’t have the legal right to be in our country.”

More than 150 rural hospitals have closed or eliminated inpatient services since 2010, researchers at the University of North Carolina-Chapel Hill reported. Losing a hospital can resonate throughout a community — reducing access to timely care and disrupting the local economy.

The federal government has made efforts to keep the far-flung facilities afloat, but it’s not been an easy problem to solve.

What Is Plaguing Rural Hospitals?

Experts said Vance’s statement implies that immigrants who are in the country illegally strain the resources of these hospitals, which often operate on thin margins, by taking time and energy away from other patients without paying their bills.

We contacted both Vance and Trump campaign staff members for additional information. They did not respond.

Experts on hospital financing and industry representatives generally disagreed with Vance’s assertion, noting that many other factors figure in closures.

“When we speak with our rural hospital members, that is not what we hear,” said Shannon Wu, director of payment policy at the American Hospital Association, a trade group of more than 5,000 hospitals around the country.

Brock Slabach, chief operating officer of the National Rural Health Association, said border state hospitals face challenges treating immigrants who are in the country illegally. “But I’ve never, in my discussions, had anyone link it directly to a hospital closure,” he said.

The specific situations that lead a rural hospital to close its doors are unique to each facility, researchers said, but many face some of the same stressors.

Rural hospitals tend to have low patient volumes, which presents its own set of problems. They’re frequently located in small communities, and some residents may choose to travel to hospitals in bigger cities where they can get more complex care, what researchers call “hospital bypass.”

That small number of patients can cause financial losses at small rural hospitals, said Harold Miller, president and CEO of the Center for Healthcare Quality and Payment Reform, a national health care payment and delivery systems policy center.

Hospitals have fixed costs, such as for running emergency departments, and need to have a high enough patient volume to cover them, he said.

“If a patient comes into the ED and doesn’t have insurance or can’t pay, it doesn’t really increase the cost to the hospital very much at all because the physician is already there,” he said, using an abbreviation for emergency department.

Rural hospitals treat a higher share of patients covered by Medicare and Medicaid compared with urban hospitals, according to the American Medical Association. The public insurance programs for older and low-income Americans generally pay providers less than private insurers do.

Nevertheless, Medicare is “one of the better payers” for small rural hospitals, Miller said. That’s partly because facilities with a special “critical access hospital” designation get paid more by Medicare — and, in some states, Medicaid.

Hospital industry officials and some experts say Medicare Advantage plans’ rising popularity has also hurt rural hospitals’ bottom lines because the private insurance companies that offer the plans tend to be less reliable payers than traditional Medicare.

For starters, the negotiated rates paid by Advantage plans can be lower, which is especially noticeable for those critical access facilities. Advantage plans also introduce extra levels of expensive, staff-intensive administrative burdens to ensure payment.

“They’ll deny the claim or say the patient really didn’t need that service through prior authorization, and so the hospitals don’t get paid for the service from someone who has insurance,” Miller said.

The insurance industry trade group AHIP pushed back on the assertion that Medicare Advantage plans harm rural hospitals, citing a federally supported study saying the plans actually increase rural hospital financial stability.

But the study did not compare actual payments between Medicare Advantage and traditional Medicare plans and looked at only 14 states.

People lacking legal immigration status generally cannot obtain Medicaid or Medicare coverage. But a provision within Medicaid law does allow some immigrants in the country illegally to temporarily obtain coverage, said Hayden Dublois, data and analytics director for the think tank Foundation for Government Accountability.

Medicaid, which pays less than Medicare and private insurance, “is not exactly a financial boon for hospitals,” and this could be some of what Vance is referring to, Dublois said.

In data from a few states, Dublois found a rise in people enrolling in Medicaid without being able to verify their immigration status. But his research hasn’t looked specifically at how this population might affect rural hospitals’ financial viability.

Some states have acted in recent years to expand health coverage to people in the country illegally — offering insurance to more than 1 million low-income immigrants.

One of those states, California, has had nine hospitals close or end in-patient services since 2005.

People may be able to pay out-of-pocket for care, researchers said, or may have access to private insurance through an employer.

Covering the costs for the uninsured is only one financial stressor rural hospitals face, said George Pink, deputy director of the North Carolina Rural Health Research Program.

“Is that going to be enough to drive a hospital into bankruptcy? Probably not,” he said.

A financial decline can take years, Pink said. As losses mount, hospitals can be forced to sell property or other assets, draw down any financial reserves, and max out their credit.

“This is not an overnight phenomenon,” he said.

Our Ruling

Vance said providing care for immigrants without legal status was “bankrupting” rural hospitals and forcing them to close.

Although that population is more likely to be uninsured, living in the country illegally does not mean people lack the ability to pay for health care — especially if they live in states that offer them insurance coverage.

Research shows many factors contribute to rural hospital closures — not solely financial losses from providing care for those without insurance, whether those people are migrants in the country illegally or U.S. citizens.

We rate Vance’s statement False. 

This article was produced by KFF Health News, a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF — the independent source for health policy research, polling, and journalism. 

Our sources:

PBS NewsHour, “WATCH LIVE: Vance Addresses Campaign Rally in Eau Claire, WI,” Sept. 17, 2024.

HSHS Hospital Sisters Health System, “HSHS Sacred Heart Hospital and HSHS St. Joseph’s Hospital Closure Information,” accessed Sept. 26, 2024.

Cecil G. Sheps Center for Health Services Research, the University of North Carolina-Chapel Hill, “Rural Hospital Closures,” accessed Sept. 27, 2024.

GAO, “Rural Hospital Closures: Affected Residents Had Reduced Access to Health Care Services,” Dec. 22, 2020.

The Journal of Rural Health, “The Impact of Rural General Hospital Closures on Communities — A Systematic Review of the Literature,” Nov. 20, 2023.

Rural Health Information Hub, “Rural Emergency Hospitals (REHs),” accessed Sept. 30, 2024.

KFF Health News, “Federal Program To Save Rural Hospitals Feels ‘Growing Pains,’” Jan. 16, 2024.

Microsoft Teams interview, Shannon Wu, director of payment policy at the American Hospital Association, Oct. 1, 2024.

Zoom interview, Brock Slabach, chief operating officer, National Rural Health Association, Oct. 1, 2024.

Cecil G. Sheps Center for Health Services Research, the University of North Carolina-Chapel Hill, “Patterns of Hospital Bypass and Inpatient Care-Seeking by Rural Residents,” accessed Oct. 1, 2024.

Zoom interview, Harold Miller, president and CEO, Center for Healthcare Quality and Payment Reform, Sept. 26, 2024.

American Medical Association, “Issue Brief: Payment & Delivery in Rural Hospitals,” accessed Oct. 15, 2024.

Rural Health Information Hub, “Critical Access Hospitals (CAHs),” accessed Sept. 30, 2024.

KFF, “Medicare Advantage Enrollment, Plan Availability and Premiums in Rural Areas,” Sept. 7, 2023.

KFF Health News, “Tiny, Rural Hospitals Feel the Pinch as Medicare Advantage Plans Grow,” Oct. 23, 2023.

Email interview, James Swann, director of communications and public affairs, AHIP, Oct. 21, 2024.

Medicaid.gov, “Implementation Guide: Citizenship and Non-Citizen Eligibility,” accessed Oct. 10, 2024.

Zoom and email interview, Hayden Dublois, data and analytics director, the Foundation for Government Accountability, Oct. 1, 2024.

The Commonwealth Fund, “How Differences in Medicaid, Medicare, and Commercial Health Insurance Payment Rates Impact Access, Health Equity, and Cost,” Aug. 17, 2022.

KFF Health News, “States Expand Health Coverage for Immigrants as GOP Hits Biden Over Border Crossings,” Dec. 28, 2023.

Phone interview, George Pink, deputy director, North Carolina Rural Health Research Program, Sept. 30, 2024.

KFF, “State Health Coverage for Immigrants and Implications for Health Coverage and Care,” May 1, 2024.