LGBTQ+ People Relive Old Traumas as They Age on Their Own

Bill Hall, 71, has been fighting for his life for 38 years. These days, he’s feeling worn out.

Hall contracted HIV, the virus that can cause AIDS, in 1986. Since then, he’s battled depression, heart disease, diabetes, non-Hodgkin lymphoma, kidney cancer, and prostate cancer. This past year, Hall has been hospitalized five times with dangerous infections and life-threatening internal bleeding.

But that’s only part of what Hall, a gay man, has dealt with. Hall was born into the Tlingit tribe in a small fishing village in Alaska. He was separated from his family at age 9 and sent to a government boarding school. There, he told me, he endured years of bullying and sexual abuse that “killed my spirit.”

A man wearing a vest with animal and feather designs on it over his checkered shirt stands and looks at the camera.
Bill Hall, who lives alone in Seattle, contracted HIV in 1986. Since then, he has battled depression, heart disease, diabetes, non-Hodgkin lymphoma, kidney cancer, and prostate cancer. This past year, he’s been hospitalized five times with potentially life-threatening medical crises.

Because of the trauma, Hall said, he’s never been able to form an intimate relationship. He contracted HIV from anonymous sex at bath houses he used to visit. He lives alone in Seattle and has been on his own throughout his adult life.

“It’s really difficult to maintain a positive attitude when you’re going through so much,” said Hall, who works with Native American community organizations. “You become mentally exhausted.”

It’s a sentiment shared by many older LGBTQ+ adults — most of whom, like Hall, are trying to manage on their own.

Of the 3 million Americans over age 50 who identify as gay, bisexual, or transgender, about twice as many are single and living alone when compared with their heterosexual counterparts, according to the National Resource Center on LGBTQ+ Aging.

This slice of the older population is expanding rapidly. By 2030, the number of LGBTQ+ seniors is expected to double. Many won’t have partners and most won’t have children or grandchildren to help care for them, AARP research indicates.

They face a daunting array of problems, including higher-than-usual rates of anxiety and depression, chronic stress, disability, and chronic illnesses such as heart disease, according to numerous research studies. High rates of smoking, alcohol use, and drug use — all ways people try to cope with stress — contribute to poor health.

Keep in mind, this generation grew up at a time when every state outlawed same-sex relations and when the American Psychiatric Association identified homosexuality as a psychiatric disorder. Many were rejected by their families and their churches when they came out. Then, they endured the horrifying impact of the AIDS crisis.

“Dozens of people were dying every day,” Hall said. “Your life becomes going to support groups, going to visit friends in the hospital, going to funerals.”

It’s no wonder that LGBTQ+ seniors often withdraw socially and experience isolation more commonly than other older adults. “There was too much grief, too much anger, too much trauma — too many people were dying,” said Vincent Crisostomo, director of aging services for the San Francisco AIDS Foundation. “It was just too much to bear.”

In an AARP survey of 2,200 LGBTQ+ adults 45 or older this year, 48% said they felt isolated from others and 45% reported lacking companionship. Almost 80% reported being concerned about having adequate social support as they grow older.

Embracing aging isn’t easy for anyone, but it can be especially difficult for LGBTQ+ seniors who are long-term HIV survivors like Hall.

Of 1.2 million people living with HIV in the United States, about half are over age 50. By 2030, that’s estimated to rise to 70%.

Christopher Christensen, 72, of Palm Springs, California, has been HIV-positive since May 1981 and is deeply involved with local organizations serving HIV survivors. “A lot of people living with HIV never thought they’d grow old — or planned for it — because they thought they would die quickly,” Christensen said.

Jeff Berry is executive director of the Reunion Project, an alliance of long-term HIV survivors. “Here people are who survived the AIDS epidemic, and all these years later their health issues are getting worse and they’re losing their peers again,” Berry said. “And it’s triggering this post-traumatic stress that’s been underlying for many, many years. Yes, it’s part of getting older. But it’s very, very hard.”

Being on their own, without people who understand how the past is informing current challenges, can magnify those difficulties.

“Not having access to supports and services that are both LGBTQ-friendly and age-friendly is a real hardship for many,” said Christina DaCosta, chief experience officer at SAGE, the nation’s largest and oldest organization for older LGBTQ+ adults.

A senior Black man with a white and gray beard smiles at the camera.
Donald Bell, co-chair of the Illinois Commission on LGBTQ Aging, lives alone in a studio apartment in a subsidized LGBTQ+-friendly senior housing complex in Chicago. Bell has very little money, he says, because 30 years ago he left work as a higher-education administrator to care for his elderly parents, who had serious health issues. “The cost of health care bankrupted us,” he says. (Donald Bell)

An senior woman wearing a Batman t-shirt sits on a couch and looks at the camera and smiles gently.
Diedra Nottingham was kicked out of her house by her mother at age 14 and spent the next four years on the streets. Today, Nottingham lives alone in a one-bedroom apartment in Stonewall House, an LGBTQ+-friendly elder housing complex in New York City. (Julia Mitchem)

Diedra Nottingham, a 74-year-old gay woman, lives alone in a one-bedroom apartment in Stonewall House, an LGBTQ+-friendly elder housing complex in New York City. “I just don’t trust people,“ she said. “And I don’t want to get hurt, either, by the way people attack gay people.”

When I first spoke to Nottingham in 2022, she described a post-traumatic-stress-type reaction to so many people dying of covid-19 and the fear of becoming infected. This was a common reaction among older people who are gay, bisexual, or transgender and who bear psychological scars from the AIDS epidemic.

Nottingham was kicked out of her house by her mother at age 14 and spent the next four years on the streets. The only sibling she talks with regularly lives across the country in Seattle. Four partners whom she’d remained close with died in short order in 1999 and 2000, and her last partner passed away in 2003.

When I talked to her in September, Nottingham said she was benefiting from weekly therapy sessions and time spent with a volunteer “friendly visitor” arranged by SAGE. Yet she acknowledged: “I don’t like being by myself all the time the way I am. I’m lonely.”

Donald Bell, a 74-year-old gay Black man who is co-chair of the Illinois Commission on LGBTQ Aging, lives alone in a studio apartment in subsidized LGBTQ+-friendly senior housing in Chicago. He spent 30 years caring for two elderly parents who had serious health issues, while he was also a single father, raising two sons he adopted from a niece.

Bell has very little money, he said, because he left work as a higher-education administrator to care for his parents. “The cost of health care bankrupted us,” he said. (According to SAGE, one-third of older LGBTQ+ adults live at or below 200% of the federal poverty level.) He has hypertension, diabetes, heart disease, and nerve damage in his feet. These days, he walks with a cane.

To his great regret, Bell told me, he’s never had a long-term relationship. But he has several good friends in his building and in the city.

“Of course I experience loneliness,” Bell said when we spoke in June. “But the fact that I am a Black man who has lived to 74, that I have not been destroyed, that I have the sanctity of my own life and my own person is a victory and something for which I am grateful.”

Now he wants to be a model to younger gay men and accept aging rather than feeling stuck in the past. “My past is over,” Bell said, “and I must move on.”

This article was produced by KFF Health News, a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF — the independent source for health policy research, polling, and journalism. 

An Arm and a Leg: Revisiting ‘Christmas In July’

“An Arm and a Leg” updates a popular episode from 2019 — a story about giving.

In 1980, a young father named Denny Buehler was battling leukemia and needed to travel from Ohio to Seattle for treatment. To raise money for the trip, his friends and family organized a softball tournament.

Denny passed away a few months later, but his friends and family turned the softball tournament into a beloved tradition. For more than 40 years, they have hosted the games and sold hot dogs to raise money for other people in the area who need help with medical expenses.

In 2019, the Denny Buehler Memorial Foundation found a way to make a bigger impact, buying up old medical debt — and erasing it. Today, its partner in the effort, now known as Undue Medical Debt, has wiped away billions in debt.

Note: “An Arm and a Leg” uses speech-recognition software to generate transcripts, which may contain errors. Please use the transcript as a tool but check the corresponding audio before quoting the podcast.

Dan: Hey there–

We are bringing back a story we first put out five years ago. We called it “Christmas in July” because it’s a story about giving. 

Some things have changed since 2019 — hi, we’ve had a couple big presidential elections and a pandemic. And there’s been some news on our beat recently. We’ll have some updates and some context to add at the end. 

For now, here’s the story:

In 1980, Denny Buehler was a 24 year old guy with three kids and leukemia.  He needed a bone marrow transplant, and in those days, that was not available in Cincinnati, where he lived. He had to go to Seattle, with his sister, who was the donor. And his wife.

Jenny: Well I remember my dad and I’m the only one of my siblings who does.

This is Denny’s oldest daughter, Jenny Spring. She was four when he went to Seattle.

Jenny: I do remember knowing he was sick. I remember, you know, we lived with his parents, our grandparents, while he and my mom and aunt Cynthia were in Seattle.

It was a long distance relationship:  Letters. Sending tapes back and forth– in those days, long-distance phone calls were expensive. 

Jenny: I remember reading my first book, go dog, go onto a cassette tape and sending it out to Seattle.

Back home, Denny’s other sister, Mary Beth, organized a softball tournament to raise money for all the expenses: Flights to Seattle, places to stay.  

[[ENTER THEME]]

And that softball tournament– that one-off event that was part of one family’s struggle– became the germ of something that is now– 40 years later — starting to help a LOT of people. 

This is An Arm and a Leg, a show about the cost of health care. I’m Dan Weissmann.

[[THEME FADES UNDER NEXT TRACK]]

The bone marrow transplant worked but Denny died of pneumonia a few months later. February 14, 1981

Jenny: We had a Valentine’s day party at school. I was in kindergarten and my mom’s brother, my uncle Tim came to pick me up from school, which was very strange. 

Jenny (cont): And he took me over to my dad’s parents’ house.

Jenny: And I remember I was eating a red heart shaped lollipop sitting in the front seat of the car cause kids were allowed to do that back then. And uh, I remember he stopped hard and I bit down on the lollipop It broke in my mouth and I looked over at him and, and I realized he was trying not to cry. 

[[ENTER MUSIC:  LOW-COAL CAMPER]]

They got there. The whole family was there– both sides– all waiting to give her the news

Jenny: I remember I said, my daddy died?

And that left the family in a tough situation, and not just emotionally.

[MUSIC FADES — OUT AFTER “HE WAS 24]

Jenny: You know, he was 24 and then my mom, you know, same age. Three kids, five and under, high school diploma. Trying to figure out how to make things work.

ED: You know we didn’t have a whole lot. 

This is Jenny’s brother Ed. Four years younger

ED: You know, there were times where we had to go grocery shopping at grandma and grandpa’s house, you know.

Jenny: That is true. I remember– yeah we’d go in and you know, mom would take food from the cabinets in the fridge and we’d take it home. And I’d, you know, they knew she was doing it. But they bought extra and it was just, you know, nobody talked about it. But that was the way it worked for a while.

The grandparents also stepped forward to help out in bigger ways. Like they purchased a house for the family in a close-knit little suburb, Greenhills. Good schools, a sense of community, all thanks to grandma and grandpa.

Jenny: Without them, I don’t know where we would’ve been. You know as a teacher, I work with a lot of kids that come from low income families and they tell me about their lives and I, you know, I reflect on that. That’s so easily how things could have been for my family without support from both sets of grandparents.

[[MUSIC STARTS FADING UP DURING NEXT TRACK:  Heartland Flyer]]

The life Jenny’s grandparents made possible included more than just food and shelter, a sense of safety. Being part of that community meant time for celebration, for PLAY. In Greenhills, it meant… softball.  

Ed: There’s a drive to the left.

Jenny: We kind of grew up at the ball field . You know, my mom played. My aunt Mary Beth, it was just, you know, kind of that softball life and it’s hard to know in my memory where the separation is between just being up there because they were playing in leagues– and when the tournament began.

The tournament. 

After Denny died, his sister Mary Beth and her friends organized a SECOND tournament. This one was to help out a friend who had gotten into a motorcycle accident.

After that, the tournament became an annual tradition. 

Announcer: We’re at Spoils Field in Green Hills for the 15th annual Denny Buehler Memorial Charity Softball Tournament. 

There was pretty much always somebody in the community to help. Somebody with big medical problems, not enough money. Sometimes more than one somebody. 

For Denny Buehler’s kids, the tournament was part of every year’s routine.

ED: My whole life, you know, it’s just been, it’s like Christmas or you know Easter or new years. It’s like a holiday for us in the family. You know, we have, another one that just happens to come in July.

Ed was an athletic kid, couldn’t wait to be able to play in the tournament himself. He had to wait until he was 17.  

[[MUSIC OUT]]

Then, not that many years later, when Ed was 25, the group of friends that had been running the tournament said they were ending it. 

ED: They ran it for 25 years and they were, they were just ready to be done, they were like you know we made it 25 years. It ran its course.

These folks had been young when they started it– in their mid-20s. 

[MUSIC FADES IN:  Perspiration — Lighter Touch (Adam, let’s kill the whistling, via stems please)]]

That was 1980. Now it was 2005. They had enjoyed a lot of good times, they’d worked hard, they’d helped dozens of people, played a LOT of softball, drank a lot of beer. It was a thing they had done for a long, important period in their lives. 

For Denny Buehler’s kids, it was more than that. It was an annual tradition they had always known– not for part of their lives, their whole lives. It was a celebration they could count on, a community event– a chance for their family, a family that had struggled, to be in a position to give back, to be leaders. And it was a legacy from the dad they had grown up without.

Jenny for one was NOT ready for it to end. A couple of her friends, and her husband said they would help. Of course Ed was game too. 

[MUSIC FADES AND OUT]]

Jenny told her Aunt Mary Beth she wanted to take over the tournament.

Jenny: And she was a little skeptical because I’ll tell you what, when I was, Oh gosh, back then, let me think. What was I doing in life? I was singing in a punk band.

[[MUSIC: Shut Up, B—  by the Hypochondriacs]]

Jenny:  [Laughs]  I probably had pink hair.

The band was called the Hypochondriacs!  This is their hit.

These days Jenny is a teacher, and a leader for her daughter’s girl scout troop. She sings with a community choir — with 1200 members — that she helped start. 

But at the time…

Jenny: I didn’t have a big track record for taking on projects and responsibilities. 

Jenny: I had learned to book and promote shows and I guess that would be the first type of project that I took on was promoting punk rock bands, but, you know, to my family, that wasn’t a serious thing. That wasn’t.

[[MUSIC BUMPS IN VOLUME, THEN OUT]]

But of course Jenny’s aunt Mary Beth wasn’t about to tell her no, she couldn’t try. Mary Beth introduced Jenny to the rest of the committee that had run the tournament. They taught her what they could about how the thing worked, and then it was up to her and whoever she could round up. 

Jenny: So I remember the first year we did the tournament, just not being able to sleep, you know?

[MUSIC IN:  Spunk Lit]]

JENNY, cont: Just being so nervous about if we were going to be able to pull it off

Jenny: It was my brother, my sister, my husband, a few of my friends — the guitar player from my band coming up there with purple hair.

They pulled it off. Barely. 

And they had a lot to learn. For instance, for a long time the most important money-maker for the whole event has been running a grill, hot dogs, and burgers, selling food. But the new generation’s first time out, they didn’t make much.  

It turned out their idea for STAFFING the grill had some built in problems. That idea seemed like a way to quickly grab some extra volunteer power:  When a team got eliminated, their players would take a turn staffing the grill. 

ED: And then we realized, wait, we’re not making any money because they’re just giving all the food away you know to their friends. They lost and they’re handing out burgers and hot dogs like they’re candy.

Over time, Jenny and Ed and the rest of their crew tightened things up– and got a LOT more volunteers, and made some new rules. 

These days the tournament raises about ten thousand dollars a year.  

[MUSIC OUT]]

[AMBI:  SOFTBALL!!] 

Here’s how it works. 

There’s 18 teams, double elimination. It starts Friday night– like a half a dozen games– then up bright and early on Saturday, there till late at night. Then all day Sunday, maybe into the evening. 

Ed says a couple thousand people might come every year. Alot of games, a lot of beer, burgers and corn on the cob.

[[AMBI FADES]]

In 2015, ten years after the new generation took over, they took a new step: turning this ad-hoc event, this thing that had just somehow kept going for more than 30 years– into an institution: 

They incorporated as the Denny Buehler Memorial Foundation, an official tax-exempt non-profit organization.  

The idea was, they could start to think bigger. 

ED: You know we’re working really hard. We’re doing really good things that we, we all really like and we’re all really bought into. But the impact is, is relatively small for the amount of work that goes into it. You know, I don’t want to say $10,000 is not a lot of money, but life is hard and when something’s gotten in your way, $10,000 doesn’t go really, really far.

Jenny: We would love to help more people. And so we talked for a long time about what that should be. And when I say talk, I mean we argued. (Laughs) 

And when she says a long time, she means two years. The foundation was incorporated in 2015. In the fall of 2017, they were…  still … talking. 

And then one day, inspiration. Inspiration that has led Ed and Jenny and the foundation to help their neighbors to the tune of a million dollars so far. 

That’s right after this.

This episode of An Arm and a Leg is a co-production with KFF Health News. That’s a national nonprofit newsroom producing in-depth journalism about health issues. Their reporters do amazing work — and win all kinds of awards every year. We’re honored to work with them.

So. Fall 2017. Jenny was driving home from seeing a friend– 

Jenny: And I had been talking to her about, you know, the foundation and how we were struggling to come up with an idea.

She passed through a neighborhood dense with hospitals. 

Jenny: So I’m driving through this hospital district and just all of a sudden I thought about what John Oliver did 

The year before, in 2016, the comedian John Oliver had done one of his most famous stunts on his HBO show “Last Week Tonight.” It was about a whole industry lots of us had never heard of: The buying and selling of 

JOHN OLIVER: DEBT.  

Debt. Especially medical debt. It turns out, if you’re hearing from a debt collector about an old debt, they probably don’t represent whoever you originally got in debt to– like say, a hospital. 

At some point, the hospital-or-whoever SOLD your debt — really, the right to collect on it — 

to someone else. For a lot less than you owed. 

JOHN OLIVER: and that debt buyer can then come after you for the full original amount. And if it can’t collect, potentially, it can then resell that debt for a fraction of what it paid to someone else who can still come after you for the original amount

Or sell it to somebody else for even cheaper. To the point where really old debts sell for pennies on the dollar. Actually, less than pennies.

To demonstrate how cheap it was– and how easily debt was bought and sold– John Oliver bought 15 million dollars in old medical debt, for less than half a cent on the dollar.

JOHN OLIVER: We thought: Well, instead of collecting on the money, why not forgive it? Because on one hand it’s obviously the right thing to do, but much more importantly, we’d be staging the largest one time giveaway in television show history. 

JOHN OLIVER: So what do you say? Are you ready to make television history? Let’s do this!

Jenny: It was just like an inspiration –I was like, this is the idea!

She got home and got to work.

Jenny: You know, I pulled out my laptop and I started researching and… 

She found that John Oliver had worked with a non-profit that specializes in raising money to buy and forgive old medical debts. They’re called RIP Medical Debt. 

Jenny: John Oliver had vetted them. 

Check. Good sign. She kept going. A few hours later, she was talking with Jerry Ashton, one of the group’s co-founders.

Jenny: I said, how are you doing this? How does this work?

And she liked what she heard.   

Jenny:  I love their story of how they were debt collectors. And realized how they could use that power for good.

Yep. Jerry Ashton and Craig Antico had been debt collectors for decades. They reversed course after working with volunteers from Occupy Wall Street, who raised money for a project called “Rolling Jubilee” to buy up and forgive old debts.

Jerry Ashton: We were, basically, a back office for them. 

This is Jerry.  

JERRY: They went out, and they raised a $700,000 eventually. 

Jerry says he and Craig helped them use that money to buy up — and forgive — $30 million in debt.  And when the Rolling Jubilee wound down, Jerry and Craig started RIP Medical Debt. That was in 2014. 

Jerry Ashton: The first year or so we starved to death. But then John Oliver discovered us. 

John Oliver brought folks to them– folks like Jenny Spring. 

This year, RIP Medical Debt has raised enough money to pay off a billion dollars in old debt. Craig Antico says two things allow them to do it for about a penny on the dollar. 

[[MUSIC IN: Lobo Lobo]] 

One is: They’re buying old debts. Hard-to-collect-on debts. The companies that own these debts now– the right to collect on those debts– they don’t expect to get 100 percent of what’s owed, or ANYTHING like it and anything they get, they’re going to spend years chasing. 

Craig Antico: Let’s say they’re only going to collect 2% over the next 10 years.

Cash upfront sounds good. The other thing is, RIP Medical Debt is buying in bulk.

Craig Antico: If I went to a hospital and said, “I see you have $1,000 bill here for Jane.” And I offered them $10, they’re gonna laugh. If I put a thousand of those Janes together 

That’s worth talking about. Instead of a thousand negotiations for ten dollars each, it’s one negotiation for ten thousand dollars.

So, it’s only because we abolish so much debt at one time that they’re willing to do this.

Jenny took it all in. It added up. 

[MUSIC STARTS TO FADE]]

Jenny: I came to the board meeting and I, and I said, Hey look, here’s a little bit of research I’ve done and I think purchasing and forgiving medical debt 

[MUSIC OUT] 

… and everybody was like, yes. I mean the consensus was instant.

That was the fall of 2017. In November, Jenny and Ed went to New York to meet the RIP Medical Debts founders in person.

By January 2018, the board had decided: They were in. With some details to work out.

ED: The interesting thing is the, the roadblock that we ran into was, Oh, man, but we love the tournament so much.

They took it slow, waited until that year’s softball tournament–before even announced what they had in mind. 

Jenny: You know, we printed up some flyers that kind of explained it. We wanted to be really sure that everybody knew that we weren’t changing the softball tournament.

That was July 2018. It took almost another year before they actually raised money for the new initiative. 

Finally, in June 2019, they put on an event at a local bar. They called it Blues, Booze and Brunch.

[MUSIC IN:  CHRIS LEE QUARTET, “BACKDOOR STRANGER”]]

They charged twenty bucks– ten for kids– and put out a taco bar for the spread. If you ordered a bloody mary from the bar, a dollar went to the cause. For entertainment, there was a blues band led by one of Jenny’s old punk-rock pals. 

There was a grill on site– and they figured out how to scramble eggs on it– but everything else had to be made in advance.

MUSIC!! 

Jenny: Let’s see: Our board member Tracy spent about an hour cracking eggs before we went up there. My sister baked breakfast muffins and little pastries and things like that for weeks and put them in her freezer 

That raised the first couple of thousand. A few weeks later, the tournament went ahead as usual– raising money for a teacher’s aide at a local school with five kids and kidney cancer. 

And then, it was back to raising money to forgive medical debts. Doing whatever they could think of. Local brew-pubs hosted events — a dollar for every pint sold on a fund-raiser night went to the cause. 

[MUSIC FADES,OUT BY MIDDLE OF NEXT SENTENCE]

And there was a lot of going on facebook, asking friends to chip in five dollars or ten.

Jenny: People work hard and we’re living in a time where wages are not keeping up with, you know, the cost of things. And so it’s hard to give for a lot of families. But when people realize 10 bucks can become $1,000, that helps somebody out in a really impactful way, then they’re willing to donate. 

[[MUSIC, “HELIOTROPE,” STARTED FADING IN UNDER “willing to donate”]]

Ed’s kids made tags for Christmas gifts– you know like, from Dan to whoever

ED: My wife broadcasted it on Facebook, Hey, we’re making gift tags. You can buy six of ’em for $5. Um, and they raised $255 just making Christmas gift tags. 

Which– because of the multiplier effect– means they wiped out more than $20,000 in medical debt. With Christmas tags.

The group did a bunch of asks on Giving Tuesday at the beginning of December. Jenny says they raised $2,000 on Facebook that way, which took them over the top:  They had raised more than twelve thousand bucks– enough money to buy that first million dollars worth of medical debt: 

Jenny: People are just going to get this magic envelope in the mail 

Magic envelopes. 

ED: that say: You had this debt that had gone to collections. And it was purchased and forgiven. You never have to worry about it again.

[[MUSIC SWELLS, THEN FADES UNDER NEXT CUT, OUT BY “MILLION”]

They called RIP Medical Debts and said: We’re ready to pay off that first million. What next?

Jenny: And immediately they come back and say there’s about $37 million in your area. 

DAN: Like if you wanted to take on the whole of Cincinnati, basically. 

JENNY: Uh, well we do. We intend to, we’re going to keep going. There’s no reason to stop. 

Jenny: Medical debt is unlike any other kind of debt.  You choose to take on the debt or you choose to die. 

DAN:  Yeah.

Jenny: And it’s just, it’s not right. It’s not right. And it’s like I tell my kids: When you have everything that you need, it’s your job– it’s your responsibility to help people who don’t. And I believe that to my core because that’s what people did for us when we needed it.  

Jenny says: We’re living in weird times. It is easy to be cynical. But this — making things a little bit better this is what we’re here for. It’s what we owe to each other. 

JENNY: And, why not? What else do you have to do?  

Dan: That’s the story, as we ran it in 2019. 

Some things have changed since then. For one, RIP Medical Debt changed its name, earlier this year, to Undue Medical Debt — that’s spelled U – N – D – U – E. Like this debt is no longer due to anyone. Or as in Medical debt is an undue — improper — thing. 

But it does sound like unDOing medical debt. Which, nice. 

They’ve also gotten a lot bigger since 2019, when they said they’d abolished a billion dollars in debts. By 2021, their website says that number was 5 billion. By 2023, it was 10 billion.

In the last couple years, state and local governments have started partnering with Undue to get old debts forgiven– often using federal money to buy up those debts: New York City, Cook County, Illinois; the state of New Jersey; And in Ohio alone, Cleveland, Akron and Cincinnati.

Recently, I caught up with Jenny Spring. COVID slowed down her family’s work on medical debt. The summer of 2020, when gatherings like softball tournaments were still basically a “no,” they organized a concert of sorts on zoom.

[AUDIO?] 

And in the years since, just running the tournament took pretty much everything they had in them. The pandemic was a big deal.

Jenny: It changed our lives in ways we couldn’t predict. Everyone’s lives had become more complicated.

Dan: And it’s taken a long time to regroup. 

But now, she says, they’re ready to take on more. And seeing how much Undue Medical Debt has grown– it leaves them thinking maybe they should take on something different.

Jenny: It’s great paying off medical debt. We’re really glad we did that. But, um, is there something more immediate that we can do? Is there something that helps people before they’re in medical debt, before they’re facing bankruptcy, before their family is, you know, on the brink of financial ruin?

Dan: One idea they’re thinking about draws inspiration from two sources they’ve drawn on before. 

One is family experience. In this case, professional experience. Jenny’s mom works in medical billing.

The other is… pop culture.

Jenny: I don’t, if you’ve ever seen the Incredibles, there’s this great scene where Mr. Incredible gets himself fired from his health insurance job and they’re mad at him because he’s telling everyone how to get their claims paid

Boss: They’re experts! Experts, Bob!] Exploiting every loophole! Dodging every obstacle! 

Jenny: Bob, they’re navigating the bureaucracy. Um, so, my mom is really good at navigating that bureaucracy

Dan: And over the years, in her spare time, she’s helped a lot of people navigate it. 

Jenny: Her eyes are sharp and when she goes through bills, she picks up on these things, right? And so, what if we could scale that up? What if we could raise enough money to hire contractors to do this for people for free, right? And maybe a lawyer or two to send an occasional threatening letter.

Dan: Jenny says they’re still workshopping this idea. It’ll take time to figure out details. Make a budget, a fundraising plan, all of it. More than a year. But I do love this idea so much. 

As we’re getting ready to release this, Luigi Mangione, who allegedly shot United Healthcare’s CEO, has just been arrested. 

People have been expressing their anger at insurance companies like United all week. 

It’s an anger that we’re deeply, intimately familiar with, around here. 

We say every time: We’ve taken on one of the most enraging, terrifying, depressing parts of American life. 

And no one of us can solve this. 

But that doesn’t mean there’s *nothing* we can do.  

So, among other things, I want to continue talking to people like Jenny Spring and her family. Over decades, they’ve been patiently, creatively doing what they can do. 

Put on a softball tournament. Raise money to relieve old debts. Find a way to help more neighbors stay OUT of debt. They can’t do everything. But they’re doing what they can, one step at a time.

Jenny says the board of the Denny Beuhler Memorial Foundation recently welcomed two new members — in their twenties. A third generation coming together to keep the fight going. 

I’ll catch you in a couple weeks. 

Till then, take care of yourself.  

This episode of An Arm and a Leg was produced by me, Dan Weissmann, with help from Emily Pisacreta. Our story was edited by Ann Hepperman in 2019. Ellen Weiss edited this re-release.

Adam Raymonda is our audio wizard. Our music is by Dave Weiner and Blue Dot Sessions. Gabrielle Healy is our managing editor for audience. 

Lynne Johnson is our operations manager. Bea Bosco is our consulting director of operations. 

An Arm and a Leg is produced in partnership with KFF Health News. That’s a national newsroom producing in-depth journalism about health issues in America and a core program at KFF, an independent source of health policy research, polling, and journalism. 

Zach Dyer is senior audio producer at KFF Health News. He’s editorial liaison to this show. 

And thanks to the Institute for Nonprofit News for serving as our fiscal sponsor. They allow us to accept tax-exempt donations. You can learn more about INN at INN.org. 

Finally, thank you to everybody who supports this show financially. You can join in any time at arm and a leg show, dot com, slash: support. 

And here the names of just some of the people who have pitched in since our last episode. Plus, at the end, a little audio thank-you gift.

Thanks this time to… [names redacted]

And now for that audio thank-you gift: Here is Jenny Spring — do gooder, choir nerd, mom, and Girl Scout troop leader, listening to one of her old punk rock songs for the first time in a dozen years. Jenny: It’s kind of violent. Oh my god. So, it was, uh, I’m tired of your s I’m tired of your s And I don’t care if you cry. You better quit before I sock you in the eye. Ha ha ha.


“An Arm and a Leg” is a co-production of KFF Health News and Public Road Productions.

To keep in touch with “An Arm and a Leg,” subscribe to its newsletters. You can also follow the show on Facebook and the social platform X. And if you’ve got stories to tell about the health care system, the producers would love to hear from you.

To hear all KFF Health News podcasts, click here.

And subscribe to “An Arm and a Leg” on Spotify, Apple Podcasts, Pocket Casts, or wherever you listen to podcasts.

This article was produced by KFF Health News, a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF — the independent source for health policy research, polling, and journalism. 

Caseworkers Coax Homeless People out of Las Vegas’ Tunnels for Treatment

LAS VEGAS — Case manager Bryon Johnson flashed a light into a dark tunnel beneath the glitz of the Las Vegas Strip on a recent fall afternoon. He stepped into an opening in a concrete ditch littered with trash and discarded clothing to search an underground world for his homeless clients.

Beneath the Caesars Palace hotel and casino, Johnson found one of them stretched out on a plywood bed. Jay Flanders, 49, had sores across his back, up his arms, and into his fingers. The homeless man acknowledged occasional meth use and mental health concerns. He couldn’t recall exactly how long he’d lived underground, but it had been several years.

“Why don’t you come inside,” asked Johnson, trying to persuade Flanders to leave the tunnels. “Come get treatment.”

It’s Johnson’s job to coax homeless people out of drainage tunnels that stretch beneath Las Vegas, a perilous grid where people hide from law enforcement and shelter from extreme weather but risk being swept away by floodwaters. Drugs and alcohol are prevalent. Johnson tells clients they have a better shot at recovery above ground, where they can get medical care to treat chronic illnesses, such as diabetes, depression, and heart disease, and start drug and alcohol treatment programs.

Street medicine providers and homeless outreach workers who travel into the tunnels said they have noticed an uptick in the number of people living underground as housing costs have skyrocketed and local officials have adopted a zero-tolerance approach to homelessness. Caseworkers are also confronting a level of drug addiction that’s making it harder to get people, many suffering from mental illness and health conditions, to come aboveground for care.

“It’s meth. It’s fentanyl. It’s opioids. We’re seeing it more and more,” said Rob Banghart, vice president of community integration for the nonprofit homeless outreach organization Shine a Light, who lived in the tunnels for 2½ of the five years he was homeless, often using drugs.

Now sober for more than six years, Banghart recalled the tunnels providing a respite. “In that state of mind, I said to myself, ‘It’s got a roof; it’s out of the sun.’ It’s a little twisted, but it was a community.”

Outreach workers say more people are retreating underground. Though dark and damp, the tunnels provide cover from the harsh desert sun, warmth when temperatures drop, and privacy from society’s judgment above ground.

Constructed in the 1990s and measuring some 600 miles, the tunnels provide flood control for the city and outlying communities. Homeless outreach workers said 1,200 to 1,500 people live in them. Many have constructed elaborate shelters, often out of plywood and scraps of metal or brick below the casinos that define the Strip.

Tunnel living is not limited to Nevada. Across California’s Central Valley and its southern deserts, people unable to afford housing are retreating into caves and earthen tunnels, often dug into flood control berms, riverbanks, or along drainage canals, where people can escape the heat and law enforcement. In San Antonio, homeless people have constructed tunnel encampments, and in New York, homeless people have long retreated into subterranean existence in tunnels and defunct train corridors.

In Las Vegas, some tunnel dwellers said they hide to avoid constant encampment sweeps, which have increased nationally since the U.S. Supreme Court this year ruled that local authorities have a right to enforce sleeping or camping bans in public spaces, even when no shelter or housing is available.

Others said they go down to escape the unbearable weather. Triple digits are common in the summer; this year, Las Vegas climbed as high as 120 degrees. And the tunnels provide protection when temperatures drop into the 30s in the winter. It even snows there.

Street medicine providers are also trying to persuade homeless people to leave the tunnels to receive care. In addition to more drug and alcohol use, they have seen new problems with wounds and skin disorders associated with the street drug known as “tranq,” slang for the animal tranquilizer xylazine, which is often mixed with fentanyl or meth.

Tranq causes deep skin infections that, left untreated, can lead to bone infections and require amputation.

Flanders, the homeless man in the tunnels, had several of these skin sores, which he referred to as spider bites — a euphemism for the deep skin wounds caused by tranq. He estimated he has been to the emergency room at least 10 times this year, several times requiring hospitalization.

Two men walk in an underground tunnel with their backs to the photographer as they head into darkness.
Johnson leads the way in a tunnel under the Las Vegas Strip for Freddes, a team leader for Shine a Light.(Angela Hart/KFF Health News)
A man in a dimly lit area shows wounds on his arm with a flashlight.
Jay Flanders, who is homeless, has several bites and wounds on his hands and arms.(Angela Hart/KFF Health News)

“One time I was there for six days; I almost lost a finger,” Flanders said, holding up the index finger that had been warped from a deep infection, as he started to tear up. Despite the risks, Flanders said, he still felt safer living in the tunnels than aboveground.

Las Vegas’ population boom has contributed to rising housing costs. The market rent for southern Nevada rose 20% from 2022 to 2023, according to a Clark County homelessness report — higher than the national average.

As more people get displaced, more retreat underground. And often, outreach workers say, it’s not just locals who can’t afford the rising cost of living who wind up homeless, but also out-of-towners. Some come to make it in the city’s booming entertainment industry, while others become homeless after losing it all at the casinos.

An underground tunnel made of cement. There are personal belongings and other objects near the walls.
Front-line providers say 1,200 to 1,500 homeless people live in flood control tunnels under the Las Vegas Strip. During monsoon season, homeless people are asked to move for safety.(Angela Hart/KFF Health News)
A man, standing in an underground tunnel, looks up at a grate where sunlight filters through.
Johnson looks up through a grate from inside a flood control tunnel under the Las Vegas Strip.(Angela Hart/KFF Health News)

“People come here on vacation to gamble or try and make it, and they lose everything,” said Johnson, who works for Shine a Light, one of two organizations in Las Vegas that provide substantial outreach, housing referrals, and drug treatment services for homeless people in the tunnels.

“The housing market is insane; rents keep going up. A lot of people wind up down here,” said Johnson, who lived in the tunnels until he got sober with help from Shine a Light. “People just get stuck.”

Still, Nevada’s scorching heat and rains and monsoons pose a major threat to those living in the tunnels, though it’s unclear exactly how deadly life in them can be.

But Louis Lacey, homeless response director for the nonprofit Help of Southern Nevada, said homeless people living belowground put their lives at risk, often in the monsoon season when the tunnels flood. His organization coordinates with the city of Las Vegas and Clark County to get as many people as possible into shelters before the start of the rainy season, which typically runs from June to September.

“We go into the tunnels to make sure people who want to get out are out, but not everyone leaves, often because they don’t want to leave their belongings,” he said. “People die every year.”

Trash Incinerators Disproportionately Harm Black and Hispanic People

MIAMI — When leaders of Florida’s most populous county met in September to pick a site for what could become the nation’s largest trash incinerator, so many people went to the government center to protest that overflow seating spilled into the building’s atrium.

“MIRAMAR SAYS NO TO INCINERATOR! NOT IN OUR BACKYARD,” read green T-shirts donned by some attendees who wanted to stop the new industrial waste facility — capable of burning up to 4,000 tons of garbage a day — from being built near their homes.

Residents feared the site would not only sink their property values and threaten the environment, but also potentially harm people’s health.

Even more, the locations appeared to have been selected in a way that worried civil rights and environmental advocacy groups. All four sites considered that day were in, or near, some of the region’s most diverse communities, and the state is arguing in federal court that race should not be a consideration in permitting industries that pollute the environment.

“Historically, communities of color have suffered the impacts of toxic plants near our cities, affecting our health and well-being,” Elisha Moultrie, a 30-year Miramar resident and committee leader with the Miami-Dade NAACP, told the county commissioners.

It’s “environmental injustice and racial injustice,” she said.

Miami-Dade leaders see a different challenge: the need to effectively manage trash. The county produces nearly double the national average per person of garbage, in part due to one of the region’s major industries: tourism.

Yet, throughout 2024, Miami-Dade’s elected officials delayed a decision on where to build the planned $1.5 billion incinerator, as the county mayor and commissioners wrestled with politics. County leaders are scheduled to vote on a new site in February.

“There is no perfect place,” Miami-Dade Mayor Daniella Levine Cava said in a recent memo to county leaders.

The conundrum unfolding in South Florida is indicative of what some see as a broader trend in the national fight for environmental justice, which calls for a clean and healthy environment for all, including low-wealth and minority communities. Too often land inhabited by Black and Hispanic people is unfairly overburdened with air pollution and other emissions from trash incinerators, chemical plants, and oil refineries that harm their health, said Mike Ewall, director of Energy Justice Network, a nonprofit that advocates for clean energy and maps municipal solid waste incinerators.

“All the places that they would consider putting something no one wants are in communities of color,” he said.

More than 60 municipal solid waste incinerators operate nationwide, according to data from Energy Justice. Even though more than 60% of incinerators are in majority-white communities, those in communities of color have more people living nearby, burn more trash, and emit more pollutants, Ewall said.

And in Florida, six of the nine existing incinerators are in places where the percentages of people of color are higher than the statewide average of 46%, according to data from the Environmental Protection Agency’s EJScreen, an online tool for measuring environmental and socioeconomic information for specific areas.

Before Miami-Dade County’s old trash incinerator burned down in February 2023, the county sent nearly half of its waste to the facility. Now, the county is burying much of its trash in a local landfill or trucking it to a central Florida facility — an unsustainable solution.

Joe Kilsheimer, executive director of the Florida Waste-to-Energy Coalition, a nonprofit that advocates for owners and operators of trash incinerators, acknowledges that choosing a location is hard. Companies decide based on industry-accepted parameters, he said, and local governments must identify strategies to manage waste in ways that are both safe and efficient.

“We have an industrial-scale economy that produces waste on an industrial scale,” Kilsheimer said, “and we have to manage it on an industrial scale.”

Al Salvi (left), 63, of Pembroke Pines, Florida, attends a hearing of the Miami-Dade Board of County Commissioners in Miami on Sept. 17 to speak against the county mayor’s plan to build the nation’s largest trash incinerator about 3 miles from his home. He was among dozens of people who live near the proposed site and oppose the plan. “I don’t want the byproducts of ash and dioxins affecting our health,” says Salvi, a retiree. “We don’t want that stuff in our air and water. People can move, but not when you’re a senior.”(Daniel Chang/KFF Health News)

‘Those People Don’t Matter’

Florida burns more trash than any other state, and at least three counties besides Miami-Dade are considering plans to build new facilities. Managing the politics of where to place the incinerator has especially been a challenge for Miami-Dade’s elected officials.

In late November, commissioners in South Florida considered rebuilding the incinerator where it had been for nearly 40 years — in Doral, a predominantly Hispanic community that also is home to Trump National Doral, a golf resort owned by the president-elect less than 3 miles from the old site. But facing new opposition from the Trump family, the county mayor requested delaying a vote that had been scheduled for Dec. 3.

President Joe Biden created a national council to address inequities about where toxic facilities are built and issued executive orders mandating that the Environmental Protection Agency and Department of Justice address these issues.

Asked if Trump would carry on Biden’s executive orders, Karoline Leavitt, the incoming White House press secretary, said in an email that Trump “advanced conservation and environmental stewardship” while reducing carbon emissions in his first term.

“In his second term, President Trump will once again deliver clean air and water for American families while Making America Wealthy Again,” Leavitt said.

However, during his presidency, Trump proposed drastic reductions to the EPA’s budget and staff, and rolled back rules on clean air and water, including the reversal of regulations on air pollution and emissions from power plants, cars, and trucks.

That’s a big concern for minority neighborhoods, especially in states such as Florida, said Dominique Burkhardt, an attorney with the nonprofit legal aid group Earthjustice, which filed a complaint against Florida’s Department of Environmental Protection in March 2022.

The complaint, on behalf of Florida Rising, a nonprofit voting rights group, alleges that Florida’s environmental regulator violated the Civil Rights Act of 1964 by failing to translate into Spanish documents and public notices related to the permitting of incinerators in Miami and Tampa, and by refusing to consider the impact of the facilities on nearby minority communities.

“They’re not in any way taking into account who’s actually impacted by air pollution,” Burkhardt said of the state agency. The EPA is now investigating the complaintinvestigating the complaint.

Conservative lawmakers and state regulators have been hostile to laws and regulations that center on the rights of people of color, Burkhardt said. Florida Gov. Ron DeSantis, a Republican, has signed into law bills limiting race education in public schools and banning public colleges and universities from spending money on diversity, equity, and inclusion programs.

“They want to be race-neutral,” Burkhardt said. But that ignores “the very real history in our country of racism and entrenched systemic discrimination.”

Residents and city officials from Miramar, Florida, gather in Miami on Sept. 17 to voice their opposition to Miami-Dade County’s plan to build a trash incinerator capable of burning up to 4,000 tons of garbage a day near their community, which predominantly is made up of Black and Hispanic residents. In Florida, as in the rest of the nation, municipal trash incinerators disproportionately affect people of color.(Daniel Chang/KFF Health News)

Historical racism like segregation and redlining, combined with poor access to health care and exposure to pollution, has a lasting impact on health, said Keisha Ray, a bioethicist with the University of Texas Health Science Center at Houston.

Studies have found that neighborhoods with more low-income and minority residents tend to have higher exposure to cancer-causing pollutants. Communities with large numbers of industrial facilities also have stark racial disparities in health outcomes.

Incinerators emit pollutants such as carbon monoxide, nitrogen oxides, and fine particulate matter, which have been associated with heart disease, respiratory problems, and cancer. People living near them often don’t have the political power to push the industries out, Ray said.

Ignoring the disparate impact sends a clear message to residents who live there, she said.

“What you’re saying is, ‘Those people don’t matter.’”

Covered in Ash

Florida is one of 23 states that have petitioned the courts to nullify key protections under the Civil Rights Act. The protections prohibit racial discrimination by organizations receiving federal funding and prevent polluting industries from overburdening communities of color.

Those rules ask the states “to engage in racial engineering,” argued Florida Attorney General Ashley Moody in an April 2024 letter to the EPA, co-signed by attorneys general for 22 other states. A federal court in Louisiana, which sued the EPA in May 2023, has since stopped the agency from enforcing the rules against companies doing business in that state.

Miami-Dade’s incinerator, built west of the airport in 1982, was receiving nearly half the county’s garbage when it burned down in February 2023. Though the facility had pollution control devices, those measures did not always protect nearby residents from the odor, smoke, and ash that the incinerator emitted, said Cheryl Holder, an internal medicine physician who moved into the neighborhood in 1989.

Holder said every morning her car would be covered in ash. Residents persuaded the county, which owned the facility, to install “scrubbers” that trapped the ash in the smokestack. But the odor persisted, she said, describing it as “a strange chemical — faint bleach/vinegar mixed with garbage dump smell” — that often occurred in the late evening and early morning.

Holder still started a family in the community, but by 2000 they moved, out of concern that pollution from the incinerator was affecting their health.

“My son ended up with asthma … and nobody in my family has asthma,” said Holder, who in 2018 helped found Florida Clinicians for Climate Action, a group focused on the health harms of climate change. Though she cannot prove that incinerator pollution caused her son’s illness — the freeways, airport, and landfill nearby also emit toxic substances — she remains convinced it was at least a contributing factor.

An industrial trash incinerator in Miami-Dade County, Florida, burned down in February 2023, leaving elected officials with the challenge of effectively managing nearly 5 million tons of trash produced each year. County leaders have proposed a new $1.5 billion incinerator while wrestling with the politics of where to build it. The conundrum unfolding in South Florida reflects what some see as a broader trend in the national fight for environmental justice, which calls for a clean and healthy environment, especially for low-wealth and minority communities. (Miami-Dade Fire Rescue)

Many South Florida residents are concerned about the health effects of burning trash, despite assurances from Miami-Dade Mayor Cava and the county’s environmental consultants that modern incinerators are safe.

Cava’s office did not respond to KFF Health News’ inquiries about the incinerator. She has said in public meetings and a September memo to county commissioners that the health and ecological danger from the new incinerator would be minimal. She cited an environmental consultant’s assessment that the health risk is “below the risk posed by simply walking down the street and breathing air that includes car exhaust.”

But some environmental health experts say it’s not only a facility’s day-to-day operations that are cause for concern. Unplanned events, such as the fire that destroyed Miami-Dade’s incinerator, can cause environmental catastrophes.

“It might not be part of their regular operations,” said Amy Stuart, a professor of environmental and occupational health at the University of South Florida’s College of Public Health. “But it happens every once in a while. And it hasn’t been that well regulated.”

No Easy Solutions

In addition to Miami-Dade’s planned incinerator, three other facilities have been proposed elsewhere in the state, according to Energy Justice Network and news reports.

State lawmakers adopted a law in 2022 that awards grants for expansions of existing trash incinerators and financial help for waste management companies losing revenue on the sale of the electricity their facilities generate.

A bill filed in the Florida Legislature by Democrats this year would have required an assessment of a facility’s impact on minority communities before the state provided financial incentives. The legislation died in committee.

As local governments in Florida and elsewhere turn to incineration to manage waste, the industry has argued that burning trash is better than burying it in a landfill.

Kilsheimer, whose group represents the incinerator industry, said Miami-Dade has no room to build another landfill, though the toxic ash left behind from burning trash must be disposed of in a landfill somewhere.

“This is the best solution we have for the conditions that we have to operate in,” he said.

But University of South Florida’s Stuart said that burning trash isn’t the only option and that the government should not ignore historical and environmental racism. The antidote cannot be to put more incinerators and other polluting facilities in majority-white neighborhoods, she said.

The focus of public money instead should be on reducing waste altogether to eliminate the need for incinerators and landfills, Stuart said, by reducing communities’ consumption and increasing recycling, repurposing, and composting of refuse.

South Florida residents have organized against Miami-Dade County’s plan to build the nation’s largest trash incinerator near their communities. At a September meeting of the county’s board of commissioners, many protesters dressed in green T-shirts with a simple message printed in white, “MIRAMAR SAYS NO TO INCNERATOR.” They filled the commission’s chambers and overflowed into the atrium, where they watched the meeting on a television screen. (Daniel Chang/KFF Health News)

This article was produced by KFF Health News, a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF — the independent source for health policy research, polling, and journalism. 

‘Waiting List to Nowhere’: Homelessness Surveys Trap Black Men on the Streets

LAS VEGAS — Maurice Clark huddled in his tent along dusty railroad tracks as two homeless-outreach workers began asking him questions to determine whether he would qualify for free or subsidized housing.

Did he use drugs? Had he ever been in jail? How many times had he been to an emergency room? Had he been attacked on the streets? Tried to harm himself? Engaged in sex for money?

Clark didn’t feel comfortable being honest with the two surveyors he’d never met before, who were flanked by police officers as they recorded his responses from a questionnaire on a tablet.

“I’ve done some crazy things to survive, but I’m, like, I’m going to say no because there’s these officers right there,” he said, recalling the encounter on a fall afternoon outside his tent.

“I’m a Black man in America, so asking this stuff hits a little bit different.”

National homelessness experts and local leaders say such personal questions exacerbate racial disparities in the ranks of the nation’s unhoused, particularly as more people experiencing homelessness compete for scarce taxpayer-subsidized housing amid a deepening affordability crisis.

A man, with his back to the camera, walk towards his tent in a sandy area. Other personal belongings are beside his tent.
Clark was given a questionnaire by two homeless-outreach workers flanked by police officers.(Angela Hart/KFF Health News)

Vulnerability questionnaires were created to determine how likely a person is to get sick and die while homeless, and the system has been adopted widely around the country over the past decade to help prioritize who gets housing. The more a homeless person is perceived to be vulnerable, the more points they score on the questionnaire and the higher they move in the housing queue. The surveys are being singled out for worsening racial disparities by systematically placing homeless white people at the front of the line, ahead of their Black peers — partly because the scoring awards more points for using health care, and relies on trust in the system, both of which favor white people.

Black people make up 13.7% of the overall U.S. population yet account for 32.2% of the nation’s homeless population. White people, including some people of Hispanic descent, make up 75% of the country and represent 55% of America’s homeless.

“It’s racist in a systemic way,” said Marc Dones, a California-based policy director at the University of California-San Francisco and a lead researcher for one of the nation’s largest studies analyzing the Black homeless population. “If you’re a white person, the more likely you are to rank higher than if you’re a Black person, so you’re more likely to get selected for housing.”

Vulnerability surveys took off after President Barack Obama in 2009 signed into law sweeping rules requiring the country’s local homelessness agencies, known as Continuums of Care and currently numbering 381, to adopt a method to assess the vulnerability of homeless people to receive federal housing and homelessness funding. Cities and counties predominantly adopted a survey called VI-SPDAT, which is still used by an estimated two-thirds of homeless agencies, even as it has been found to favor white people and rank Black people lower.

Some experts argue it’s time to toss the vulnerability assessment altogether and look not only at health and social needs but also systemic racism, poverty, involvement in the criminal justice system, barriers to housing, and other economic drivers that influence, and in some cases cause, homelessness. Several U.S. communities are revamping their vulnerability assessment systems to reduce racial disparities and help more Black people get housing.

[embedded content]

In Los Angeles, officials are launching an effort to use artificial intelligence to better assess whether someone should be prioritized for placement, in part by looking at overpolicing of Black people and discrimination in health care. In Las Vegas, officials are revamping their vulnerability assessment to give higher scores for systemic problems including incarceration. In Austin, Texas, officials are testing a system to account for people displaced by gentrification.

“We need to own the racism that is embedded in our systems,” said Quiana Fisher, vice president of homelessness response systems for the lead agency in Travis County, Texas, which includes Austin. “It’s not just about the tool — it’s about funding, and it’s about program outcomes. Even if it’s unintentional, we have created a homeless response system that is rooted in racism.”

The assessment tool was first tested in Boston, where members of the homeless population were more likely to be white, male, and have a severe mental illness or substance use disorder. Black people, meanwhile, are more likely to be homeless because of economic reasons, such as poverty or joblessness, and are less likely to have a record of medical care due to higher uninsurance and less use of health care.

“This whole system was piloted on this older white population in Boston, so it does a poor job of capturing the needs of Black folks, who don’t tend to be as sick as white folks — they’re more broke,” Dones said. “The initial thought was to prioritize these people because they’re going to die sooner. It was trying to tackle mortality, but it wound up in racism.”

Outreach workers Bryon Johnson (center) and Nick Freddes (left) talk to Maurice Clark, a Black man who is homeless.
Outreach workers Bryon Johnson (center) and Nick Freddes (left) talk to Clark in October.(Angela Hart/KFF Health News)

As a result, white people are more likely to gain housing because they tend to score more points on vulnerability assessments that rank sickness higher, including histories of chronic disease, addiction, mental illness, and emergency room visits and hospitalizations, according to national surveys. Black people, meanwhile, are less likely to have health insurance or medical diagnoses and to reveal their ailments, and are more mistrustful due to biases in the health care system. “Black folks are less likely to seek care, even with coverage, due to medical racism,” Dones said.

Local leaders say part of the problem is becoming homeless in the first place and economic disadvantages that drive more Black people into homelessness, including placement in foster care and higher rates of eviction and joblessness. But once homeless, helping Black people get into stable housing becomes more elusive.

In Los Angeles County, home to more homeless people than any other county in the country, 31% of homeless people are Black, though the overall Black population accounts for 9%. In Austin, Black people account for nearly 32% of the homeless population, compared with 7.6% overall. And in Clark County, which includes Las Vegas, Black people represent 42% of the homeless population but just 12% of the overall population.

“We’ve failed to capture the complex vulnerabilities of our marginalized groups. We’re asking all these questions, but we created a waiting list to nowhere,” said Brenda Barnes, who leads the Southern Nevada Homelessness Continuum of Care.

Streets of Las Vegas

Grasping his toothbrush after cleaning up in his tent on a recent morning, Clark, 45, recalled taking his housing questionnaire this year. He ticked off responses to outreach workers that should rank him high in the queue — he lacked stable housing, has been homeless for nearly four years, and has no job or reliable income.

He’d frequented emergency rooms and had been to jail, pleading guilty to a felony theft crime he said he didn’t commit, and several times for possession of drugs and paraphernalia, he told them. He used methamphetamine, mostly to be alert at night when it became dangerous. Was he ever assaulted? Yes, especially in adulthood since becoming homeless in 2020.

In reality, he hustled sometimes for a dime, and he worried he’d be targeted for taking recyclables or engaging in prostitution. “I’ve done it to get a room for a night. It’s like a last resort,” he said.

And Clark wasn’t forthcoming with outreach workers about the details of his drug use or involvement with law enforcement, that he’d sold his body for sex, that he’d experienced abuse. He couldn’t recall all the details of his medical history either. Continually fleeing law enforcement sweeps with his tent, hauling it along busy train tracks, he’s high at times, and often in a state of chaos and fear that can scramble his memory or make him fearful of arrest. He didn’t share with them his occasional thoughts of suicide or his health concerns, including possibly having diabetes.

“They asked me about drugs, I was like, um, I don’t know,” Clark said. “Like I’m supposed to tell them I got addicted to meth or sold my body for a meal and hotel room? I had no idea where this information was going or what it was being used for.” After he took the survey, no housing came.

A portrait of John Harris.
John Harris, who is homeless, has taken a housing assessment a couple of times but says he didn’t score high enough to qualify.(Angela Hart/KFF Health News)

Even those who do answer honestly find themselves competing for a limited supply of affordable housing. John Harris was sleeping under a bridge on a recent October afternoon. He said he has taken the questionnaire twice. It led nowhere.

“They asked me, have I been incarcerated? And I said yes. I’ve been to prison too many times. And I have mental health struggles,” said Harris, 59, who has been in and out of sober living shelters but still uses methamphetamine. He has been a repeat visitor to emergency rooms, and on an October afternoon recorded a high blood pressure reading that put him at risk for a heart attack — factors that should score points for vulnerability.

“I called and asked what happened with my housing. They said I didn’t score high enough,” he said. After getting his blood pressure checked by a street medicine nurse, he shrugged, saying he may just wind up back in the emergency room, as he retreated under the bridge.

“No matter what society says today, things ain’t never going to change,” he said.

‘I Don’t Know What the Solution Is’

How communities assign points to homeless people and rank them for housing is the biggest problem.

The most common questionnaire deployed by communities around the country, the VI-SPDAT, assigns points meant to gauge the vulnerability of a person living on the streets. Experts say this model was never tested as a housing assessment tool, nor meant to determine whether someone gets into housing.

“This is not a reliable instrument, and Black men consistently score the lowest for vulnerability, so they are deprioritized for housing — to get housing, you really need to score high,” said Courtney Cronley, a University of Tennessee researcher who analyzed the vulnerability assessment. Her findings were published in 2020 in the Journal of Social Distress and Homelessness.

Cronley pointed to a range of questions that exacerbate racial bias and have little to do with qualifying for housing:

How many times have you received health care in an emergency room? Have you been attacked or beaten up? Have you threatened to harm yourself or anyone else in the last year?

Does anyone force you or trick you to do things that you do not want to do? Do you exchange sex for money? Run drugs?

Experts who study the vulnerability questionnaire also point out that the racial or ethnic background of surveyors often doesn’t reflect that of the people being questioned, which can lead to inaccurate results if a respondent doesn’t feel safe or understand the survey’s purpose.

Some cities and counties are creating surveys that local homeless agencies hope will narrow racial disparities.

Clark County deployed a new vulnerability assessment in June after a 2023 secret-shopper project found the system was not connecting homeless people with housing or services, especially people of color.

“We failed in every category,” Barnes said. Formerly homeless people fanned out on the streets and in the tunnels to test whether the housing questionnaire resulted in providing housing for the most vulnerable. “All we were doing is counting people.”

A photo showing John Harris having his blood pressure checked by a woman in a mobile clinic.
Harris gets his blood pressure checked on an October afternoon.(Angela Hart/KFF Health News)

Clark County’s new weighted questionnaire now considers how likely a person is to exit homelessness on their own — instead of how likely they are to die on the streets or in the tunnels.

The new system assigns homeless people points in four categories to get higher in the queue for housing: whether someone is pregnant or a parent; whether they have a substance use disorder, chronic health condition, or mental health diagnosis; whether they’re 55 or older; and whether they have committed a felony or violent crime.

“Because you’re not going to get approved for a job or housing if they run a background check and there’s a criminal record,” she said, “so we want to address that in our housing system.”

Still, Barnes isn’t sure Clark County will get it right this time. As of mid-November, more homeless Black people were waiting for housing than white people. According to local data obtained through public records requests, nearly 1,500 Black people are in the county’s housing queue, compared with roughly 1,000 white people.

“I don’t know what the solution is,” Barnes said. “To be honest, the numbers may spike again.”

Los Angeles County, where an estimated 75,000 people experience homelessness, is creating a weighted tool to assign more points for factors that disproportionately affect people of color.

If someone has been incarcerated or detained by law enforcement, instead of getting one point, a homeless person would score five, moving them up on the housing list, said Eric Rice, a social scientist and professor at the University of Southern California.

“We are assigning more points to structural inequities,” said Rice, who is helping develop the new questionnaire.

Los Angeles County also plans to assign more points for drug use and for having HIV, which affects Black men more than any other group. New HIV diagnoses for Black adults were eight times those of white people, according to research by KFF, a health information nonprofit that includes KFF Health News, the publisher of California Healthline.

Homelessness coordinators have also revamped their vulnerability assessment in Travis County, Texas, where a Black resident is six times as likely to fall into homelessness as a white person.

The county’s homelessness agency, according to Fisher, looked at historically Black neighborhoods in Austin that had been gentrified and scored homeless people higher if they’d lived in those areas but were now homeless.

“If you lived in a place that was previously redlined or now gentrified, you got a point for that,” Fisher said. The survey also gave points for involvement in the criminal justice system, because Black people are more likely to get arrested or jailed, she said.

Some experts say the idea of using a tool to rank people should disappear altogether.

Instead, communities should have flexibility to tailor their housing resources based on the local needs and demographic makeup of their homeless populations, said Mary Frances Kenion, vice president of training and technical assistance at the National Alliance to End Homelessness.

She said communities can cultivate trust between homeless people and outreach workers through a one-on-one approach that can be more responsive to individual needs and local housing conditions, which can better determine whether someone should be moved to the top of the housing list.

Kenion also encouraged federal, state, and local governments to reimagine their approach to prioritizing people for housing based not on vulnerability but economic factors like income, history of eviction, or having a felony record. She argued communities should devote more resources to stem the flow of Black people into homelessness.

“If we don’t manage to stop that,” she said, “this is just going to keep getting exponentially worse.”

Continuously Avoiding Continued  

By Richard W. Clark

There are tens-of-thousands of inspirational quotes to be found on-line and in books innumerable and these have certainly been one of the shallow fascinations of people searching for an easier, softer way. Some people memorize pithy Big Book sentences, then announce them sincerely at AA clan gatherings, and ignore them at the first non-scrutinized opportunity. It is evident that some people cover the walls of their mind with these questionable inspirations and remain mediocre.

After being sincerely involved in studying religions for several decades, having lived in both Christian and Buddhist monasteries, and reading serious literature (both fiction and non-fiction) for over sixty years, what seems to be consistent is that ‘inspirational quotes’ can be impressive approaches to accomplishing nothing. It’s too easily assumed that a quoter of these quotes is a deep thinker rather than a good memorizer.

Pithy rejoinders are not evidence of integrity. This is often evident in listening to people talk about letting go of resentments which is reported to be one goal of stable recovery. Letting go of resentments is something to be achieved — and for a few people letting them go is a notable achievement. However, to create an awareness of a deeper responsibility here, I’ll begin with the basics, and yes, this is over-simplified.

For people who attend meetings, there are only two and a half ways of approaching recovery. The first is the Bill Wilson, God-prayer-forgiveness model initiated in 1939. A person may not necessarily become recovered but certainly being sober and belonging to the crowd of good Christians is considered a major improvement over being drunk, and it is a remarkable improvement. The second way is completely psychological, or maybe better said, being the atheist-agnostic version of recovery — the psychological approach. The third half-way choice is to try and straddle the line doing both religion and psychology and deciding to be undecided. We know from another pithy observation: half measures availed us nothing. This last way often leads to subtle insecurity and emotional chaos. My experience of these three alternatives is with wise council, the atheist-agnostic approach is by far the better choice. (I will explain clearly why this is true in a future submission.)

Prior to 1990 there were two categories of steps. Discussions were of the transformational steps (the first nine) or the maintenance steps (the last three). The last three were approached quite differently from the first nine. What’s more, Bill Wilson promised that near the end of Step Nine certain promises would appear in the lives of sober alcoholics that were the specific reward of Step 9. However, as regards his promises, there are two preconditions: painstaking and thorough.

The promises begin at p. 81 of Alcoholics Anonymous, ‘…know a new freedom and a new happiness’ through to the last one, ‘…we will intuitively know how to handle situations which used to baffle us.’ These promises are psychological. The last line of that paragraph ‘…realize that God is doing for us…’ is a realization for believers not a promise. Promises and realizations are different. Addicts who choose agnostic-atheist recovery should understand that the promises, which are not dependant on God, indicate the addict has achieved a certain psychological stability that appears as the result of hard work. It is rarely observed that the promises are immediately followed by the maintenance steps. [Spiritual Transformation, by Richard W. Clark, has an in-depth description of the psychology of the promises.]

Maintenance, as with any complicated mechanical thing like sewing machines or cars, is to keep things running smoothly. The design of the maintenance steps is to advance or deepen a newfound level of honesty or compassion and kindness. Maintenance has fallen to disfavor in recent years because of the now-present assumption that everyone will relapse. Starting over, ad-nauseum, is the order of the day. One does not need maintenance if one is either forever in recovery (there’s nothing to maintain) or forever relapsing into unsavory defective behaviour (forever starting over). It is impossible to overstate the importance of ‘mental maintenance’ regarding the five spiritual principles. When finished with the first nine steps, living sincerely in maintenance is what being recovered means. ‘Being recovered’ doesn’t indicate perfection of character, it means being successful in the hour-by-hour or day-by-day routine of personality maintenance offered in Steps 10, 11, and 12.

As much as the significant majority of Bill Wilson’s writing is religious proselytizing and should be ignored as regards mental health, he did provide an accidental glimmer of wisdom regarding resentments. From Step Four and other sundry inferences, resentments are emotionally dangerous to a recovering addict. Fair enough and quite true. It would seem then, that resentments should be avoided… but the common presentation is letting them go, as they crop up let them go, get a resentment then let it go. What is missed in this repetitive inadequacy is the overwhelming presence of second-best recovery where one ignores the neatly hidden guide to avoiding resentments from appearing… but so few of us read with contemplation.

When the maintenance steps are clearly understood and applied without religious speculation, which is hard enough for most of us, even committed atheists, Step 10 is quite unique in the annals of self-help. Step 10 is quite clear that it is ‘continuous.’ We breathe and our hearts beat continuously. Continued to take personal inventory is clearly not two or three times a day or late in the evening. Why continuous? Because within Step 10, wrongs are to be promptly admitted. An inventory being continuous is what allows for promptly addressing any wrong. The spiritual goal here is to be prompt in making amends so the reflection on possible wrongs must be frequent. A continuous inventory may be one of the four or five most continuously ignored instructions from Mr. Wilson. Spiritual irresponsibility is continuously avoiding continued.

Assuming self-reflection is continuous and prompt, only then does Step Eleven meditation on the wisdom of others in relation to ‘wrong’ become of benefit. Regular meditation, based on the wisdom of others, should lead to an understanding of why we were so resentful or annoyed and rude in the first place. Being harshly judgemental or having an unexamined sense of entitlement, or not being compassionate; being an angry victim and blaming others, often motivate rudeness or callousness that warrants an amend being required. Step Eleven meditation is not to invoke God’s forgiveness when one is callous. The continuous self-examinations at Step 10 and subsequent meditations are to develop self-discipline and forestall callous rudeness or aggression. This, over the long term, eliminates resentments from arising and then three things become evident: one is a confidence in being able to calmly manage emotional situations, another is the realization that wrongs and amends become rare necessities, and kindness or compassion towards others become a graceful part of our character.

A similar observation is made about Buddhism — the assumption that Buddhist doctrine is to let resentments go. This is a second-best misapplication of what Siddhartha Gautama intended. The unspecified benefit of psychological recovery, of not becoming resentful rather than constantly having to let it go, is one of the dynamics of original Buddhist discipline before it became contaminated by religion.

In non-religious Buddhism and advanced psychological recovery, this game of being resentful and then ‘letting go’ of resentments or defects arises from the carry-over from dysfunctional religious doctrine. Constantly ‘letting go’ means and implies that serenity can never be achieved because we are in the turmoil of always creating resentments, then realizing we have them, and then we must conduct some repetitive exercise (like prayer, surrender, and forgiveness) to let them go — wash, rinse, repeat. That’s not serenity, it’s a never-ending cycle of turmoil.

When character and consciousness — how they work in addiction — are understood in an addicted mind-set, all this repetitive chaos is optional. The achievement of the mental state of nirvana (serenity) is what Siddhartha Gautama taught in Buddhism’s very brief initial phase: a psychology of compassionate mind. Bill Wilson, without knowing it, gave us the very vague possibility of achieving this in recovery, albeit hidden under religious chaos and contradictions. He attempted to eliminate the cycle of ‘get a resentment-letting go-get a resentment-letting go.’ That’s tiresome and there are mental disciplines to eliminate this cycle. It begins with the word continued.

Siddhartha Gautama offered a way to achieve compassionate serenity that has been lost and buried under 22 centuries of religious speculation. His was the first cleanly atheist version of achieving psychological serenity. Bill Wilson hinted at a similar thing in his maintenance steps, but again, the nascent psychology was buried under religious self-deprecation and speculation.

These have been recurring awarenesses for me. Kind regards…


Richard Clark has been clean and sober since 22 Sep 1980. He got involved in AA because of the wisdom of an old-timer (In 1980 Gord B. had been sober since 1952), Richard was very open about his atheism and those men and women welcomed him in ‘as is’. He’s been sober since then with no relapses. He has started two agnostic meetings that still operate and has been a therapist in addictions work since 1984. Richard maintains a private practise with clients all across Canada and is active in his weekly agnostic meeting.

He has written three books and is presently writing a fourth book for addiction counsellors and then another one on the modern practise of recovery in Buddhism (atheist version). And here is a website with more information: Green Room Lectures.


For a PDF of today’s article, click here: Continuously Avoiding Continued.


 

The post Continuously Avoiding Continued   first appeared on AA Agnostica.

Journalists Wrap Up 2024 With Topics From Trump 2.0 to Frustration With Health Industry

KFF Health News senior fellow and editor-at-large for public health Céline Gounder discussed the incoming Trump administration — notably, the possibility of Robert F. Kennedy Jr. as Health and Human Services secretary— on the “On With Kara Swisher” podcast on Dec. 19. She also discussed the health stories that shaped 2024 on CBS on Dec. 19.


KFF Health News senior correspondent Renuka Rayasam discussed the struggle to close the health gap, especially for rural, low-income African Americans, on KERA’s “Think” on Dec. 16.


KFF Health News senior correspondent Aneri Pattani discussed state and local efforts to combat the opioid epidemic on C-SPAN on Dec. 15.


KFF Health News Peggy Girshman fellow Jackie Fortiér discussed the nationwide IV fluid shortage on PBS NewsHour on Dec. 14.


KFF Health News contributor Andy Miller discussed the killing of UnitedHealthcare’s CEO and growing frustration over difficult insurance claims on The Atlanta Journal-Constitution’s “Politically Georgia” podcast on Dec. 13.


KFF Health News chief Washington correspondent Julie Rovner discussed health insurance on CBS News on Dec. 13.


KFF Health News Northern California correspondent Vanessa G. Sánchez discussed a recent immigrant detention center lawsuit on City Limits’ podcast, “El Diario Sin Límites” on Dec. 9.


In Settling Fraud Case, New York Medicare Advantage Insurer, CEO Will Pay up to $100M

A western New York health insurance provider for seniors and the CEO of its medical analytics arm have agreed to pay a total of up to $100 million to settle Justice Department allegations of fraudulent billing for health conditions that were exaggerated or didn’t exist.

Independent Health Association of Buffalo, which operates two Medicare Advantage plans, will pay up to $98 million. Betsy Gaffney, CEO of medical records review company DxID, will pay $2 million, according to the settlement agreement. Neither admitted wrongdoing.

“Today’s result sends a clear message to the Medicare Advantage community that the United States will take appropriate action against those who knowingly submit inflated claims for reimbursement,” Michael Granston, a DOJ deputy assistant attorney general, said in announcing the settlement on Dec. 20.

Frank Sava, a spokesperson for Independent Health, said in a statement: “The assertions by the DOJ are allegations only, and there has been no determination of liability. This settlement is not an admission of any wrongdoing; it instead allows us to avoid the further disruption, expense, and uncertainty of litigation in a matter that has lingered for over a decade.”

Under the settlement, Independent Health will make “guaranteed payments” of $34.5 million in installments from 2024 through 2028. Whether it pays the maximum amount in the settlement will depend on the health plan’s financial performance.

Michael Ronickher, an attorney for whistleblower Teresa Ross, called the settlement “historic,” saying it was the largest payment yet by a health plan based solely on a whistleblower’s fraud allegations. It also was one of the first to accuse a data mining firm of helping a health plan overcharge.

A photo of a woman posing for a picture indoors.
In a whistleblower lawsuit, Teresa Ross accused a Medicare Advantage health insurance provider of billing the government for bogus diagnoses.(Cassidy Tobin)

The settlement is the latest in a whirl of whistleblower actions alleging billing fraud by a Medicare Advantage insurer. Medicare Advantage plans are private health plans that cover more than 33 million members, making up over half of all people eligible for Medicare. They are expected to grow further under the incoming Trump administration.

But as Medicare Advantage has gained popularity, regulators at the federal Centers for Medicare & Medicaid Services have struggled to prevent health plans from exaggerating how sick patients are to boost their revenues.

Whistleblowers such as Ross, a former medical coding professional, have helped the government claw back hundreds of millions of dollars in overpayments tied to alleged coding abuses. Ross will receive at least $8.2 million, according to the Justice Department.

Ross said that CMS “created a bounty” for health plans that added medical diagnosis codes as they reviewed patients’ charts — and whether those codes were accurate or not “didn’t seem to bother some people.”

“Billions of dollars are being paid out by CMS for diagnoses that don’t exist,” Ross told KFF Health News in an interview.

Data Mining

DOJ’s civil complaint, filed in September 2021, was unusual in targeting a data analytics venture — and its top executive — for allegedly ginning up bogus payments.

DxID specialized in mining electronic medical records to capture new diagnoses for patients — pocketing up to 20% of the money it generated for the health plan, according to the suit, which said Independent Health used the firm from 2010 through 2017. DxID shut down in 2021.

Gaffney pitched its services to Medicare Advantage plans as “too attractive to pass up,” according to the Justice Department complaint.

“There is no upfront fee, we don’t get paid until you get paid and we work on a percentage of the actual proven recoveries,” Gaffney said, according to the complaint. Timothy Hoover, an attorney for Gaffney, said in a statement that the settlement “is not an admission of any liability by Ms. Gaffney. The settlement simply resolves a dispute and provides closure to the parties.”

‘A Ton of Money’

CMS uses a complex formula that pays health plans higher rates for sicker patients and less for people in good health. Health plans must retain medical records that document all diagnoses they highlight for reimbursement.

Independent Health violated those rules by billing Medicare for a range of medical conditions that either were exaggerated or not supported by patient medical files, such as billing for treating chronic depression that had been resolved, according to the complaint. In one case, an 87-year-old man was coded as having “major depressive disorder” even though his medical records indicated the problem was “transient,” according to the complaint.

DxID also cited chronic kidney disease or renal failure “in the absence of any documentation suggesting that a patient suffered from those conditions,” according to the complaint. Past conditions, such as heart attacks, that required no current treatment, also were coded, according to the DOJ.

The suit alleges that Gaffney said renal failure diagnoses were “worth a ton of money to IH [Independent Health] and the majority of people (over) 70 have it at some level.”

Ross filed the whistleblower case in 2012 against Group Health Cooperative in Seattle, one of the nation’s oldest managed-care groups.

Ross, a former medical coding manager there, alleged that DxID submitted more than $30 million in disease claims — many of which were not valid — on behalf of Group Health for 2010 and 2011. For instance, Ross alleged that the plan billed for “major depression” in a patient described by his doctor as having an “amazingly sunny disposition.”

Group Health, now known as the Kaiser Foundation Health Plan of Washington, denied wrongdoing. But it settled the civil case in November 2020 by agreeing to pay $6.3 million. The DOJ filed a second complaint in 2021, against Independent Health, which also used DxID’s services.

Ross said she lost her job after her suit became public in 2019 and was unable to secure another one in the medical coding field.

“It was rough at times, but we got through it,” she said. Ross, 60, said she is now “happily retired.”

False Claims

Whistleblowers sue under the False Claims Act, a federal law dating to the Civil War that allows private citizens to expose fraud against the government and share in any recovery.

At least two dozen such suits, some dating to 2009, have targeted Medicare Advantage plans for overstating the severity of medical conditions, a practice known in the industry as “upcoding.” Previous settlements from such suits have totaled more than $600 million.

The whistleblowers have played a key role in holding health insurers accountable.

While dozens of CMS audits have concluded that health plans overcharged the government, the agency has done little to recoup money for the U.S. Treasury.

In a surprise action in late January 2023, CMS announced that it would settle for a fraction of the estimated tens of millions of dollars in overpayments uncovered through its audits dating to 2011 and not impose major financial penalties on health plans until a round of audits for 2018 payments, which have yet to be done. Exactly how much plans will end up paying back is unclear.

“I think CMS should be doing more,” said Max Voldman, an attorney who represents Ross.

This article was produced by KFF Health News, a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF — the independent source for health policy research, polling, and journalism. 

An Interview with NuQI’s John Wright

Addiction Recovery Bulletin

EMR MATTERS –

October 2024 – The challenge is that many in the behavioral health space aren’t actively looking for AI solutions yet. Our role has been more about introducing these technologies. We ensure our products are HIPAA compliant by not using generalized language … I’ve worked with AI in every decade since the 80s, and I’ve always been fascinated by its potential. The launch of ChatGPT in late 2022 was a turning point because this was the first time that the public had access to a large language model in a way that showed them its incredible abilities to perform tasks beyond human capabilities. As an engineer, this inspired me to create products that leverage AI to solve real-world problems, especially in areas like behavioral health where the need is great but the resources are limited.

The challenge is that many in the behavioral health space aren’t actively looking for AI solutions yet. Our role has been more about introducing these technologies. We ensure our products are HIPAA compliant by not using generalized language models like ChatGPT. Instead, we’ve built our own database and system to maintain privacy and security, ensuring that no data is stored or accessible to anyone. This gives agencies peace of mind knowing that their data remains confidential and secure.

As we began testing various AI applications in behavioral health, we quickly learned that a key need for therapists was in the creation of notes. At a high level, our system is similar to ChatGPT in that it can summarize discussions that occur between therapists and their patients. However, we go further by tailoring the AI to specific sessions, such as therapy or group meetings, and generating precise notes like SOAP notes or session progress. These notes can then be integrated into an EHR for easy use. And we also use feedback from clinicians to continuously improve the system, ensuring it meets their needs without compromising security.

CONTINUE@FosterCareTech

The post An Interview with NuQI’s John Wright appeared first on Addiction/Recovery eBulletin.

Readers Offer Solo Agers Support and Reflect on Ancestors

Letters to the Editor is a periodic feature. We welcome all comments and will publish a selection. We edit for length and clarity and require full names.


Solo Agers, Join the Crowd!

Enjoyed your panel discussion (Watch: ‘Going It Alone’ — A Conversation About Growing Old in America, Dec. 12). I am 85, retired at 55. Traveled (birding) in 65 countries. In 2010, I created the First Friday Ideas Salon. We just had our 171st gathering, via Zoom. I curate each gathering. Last month, we hosted a conservator and a scientist from the Getty museum. The month before: a Cal Tech professor on robotics. I have had many professors, a Nobel Prize winner, MacArthur Foundation “genius grant” recipients, a presidential candidate, etc.

Recently, I became interested in the issue of how retirees whose professions defined their persona can, after age 80, as a “senior senior,” continue to be a person of substantiality. I created the Glorious Age of Aging to look at this issue over six hourlong meetings over three months. The focus was on “action steps.”

So, for me, as a solo ager, the key has been to take action. That said, I worry about the time when my body does not keep up with my mind. Actually, I would say my body has declined and my ability to take care of things required in my life. So, I have prepared food delivered. I hire people to help with my beloved succulent garden and with other chores — so far, young people in my neighborhood. I live in Los Angeles with famously poor public transportation. I use Uber as well as drive. So I wonder if I will be able to continue to find services that will support my living alone. And the real worry is the process of dying — not death — I do not worry about that. Recently, I have decided that I need to create an “intentional community,” which will be there when I need it. I am just beginning to think about how to do this.

— Edna R.S. Alvarez, Los Angeles


A social services agency that has been delivering meals to homebound seniors in all five of New York City’s boroughs for 43 years weighed in on X:

— Citymeals on Wheels, New York City


Keeping Pace With Solo Agers

As Judith Graham makes clear (“Going it Alone: Homebound Seniors Living Alone Often Slip Through Health System’s Cracks,” Dec. 2), more Americans are living on their own as they age, relying on a patchwork of health care services to get by.

That’s why the Program of All-Inclusive Care for the Elderly (PACE) is so critical to this conversation. PACE helps older Americans — 91% of whom are 65 or older and have chronic health conditions — stay safe and healthy in their own homes.

The program offers at-home assistance with daily tasks, like dressing, bathing, and eating, and transportation to the PACE day center, where participants can socialize and receive medical care. Unlike other settings, the PACE program coordinates all aspects of a participant’s care, from scheduling medical appointments to providing meals and nutritional advice.

PACE physicians and nurse practitioners’ comprehensive approach to care benefits those who are homebound and may not otherwise have an in-home caregiver to rely on. PACE is also a particularly promising option for those with dementia, as the program allows older adults to receive memory care in the comfort and familiarity of their homes.

It’s also more affordable than many alternative care options. States have reported that PACE costs taxpayers 13% less than the cost of other Medicaid services, all without copays, deductibles, or out-of-pocket expenses for participants.

The program has been quietly transforming our nation’s senior care system, but it remains underutilized. Only a fraction of older Americans are currently eligible for the program, but its benefits can extend far beyond this group. It’s critical for lawmakers to advance policies that expand access to PACE services so that we can set more older Americans up for success as they age at home.

— Jerry Wilborn, chief medical officer of One Senior Care, Erie, Pennsylvania


Gone But Not Forgotten

In February 2023, I came across an article by Tony Leys about the closing of Iowa’s Glenwood Resource Center, which left me reflecting deeply on both the residents who still lived there and those who had passed away and are now buried at the institution. Among them is my great-grandmother, Margarita Hedlund. As I read, I couldn’t help but think about the many people like her, who spent more of their lives at Glenwood than they ever did with their families, and who now rest in the cemetery there.

Nearly two years later, I read another article by Mr. Leys expressing concern for the over 1,300 residents buried in the Glenwood Cemetery and who will take responsibility for maintaining their graves (“After Institutions for People With Disabilities Close, Graves Are at Risk of Being Forgotten,” Nov. 21). The thought of my great-grandmother’s grave and the graves of so many others being neglected is deeply troubling.

Margarita Petterson was born in Sweden in 1866. She came to America as a young child and married Erik Hedlund, also from Sweden. They had five children together, but Erik passed away in 1900, just months before their youngest child was born. My great-grandmother lived with her oldest daughter, but in 1912, for reasons unknown to me, she was sent to Glenwood. She remained there until her death in 1949. Although I knew she had lived at Glenwood, I was never told why, and when I reached out to the institution for information, I received only a brief record. It stated she had a moderate intellectual disability (IQ between 35-49) and died of cirrhosis of the liver. The only other detail I learned was that her son had decided to have her buried in the cemetery there.

An archival photo of a husband and wife seated with two young daughters.
Margarita Hedlund with her husband, Erik Hedlund, and daughters Bertha and Emma.

I can’t help but feel sadness and frustration that she was buried so far from her husband, who passed away nearly half a century earlier. There are likely many more families with similar stories — of loved ones abandoned or forgotten in a place like Glenwood, with little more than a name and a grave marker to honor them.

Reading about the fate of Glenwood’s residents and the ongoing concern about the cemetery maintenance only deepens my desire to know more about my great-grandmother’s life and her time there. When it’s your own family member, the need for answers is personal. I hope others who may be in the same situation find ways to learn more about their relatives’ lives at Glenwood and that we, as a community, remember and care for those who were forgotten too long.

— Marlys Adkins, Clare, Iowa


Disability Scoop, a 16-year-old news site that offers daily coverage of autism, intellectual disability, cerebral palsy, Down syndrome and other issues vital to the developmental disability community, shared the article on LinkedIn.


ER Care Goes Beyond Doctors

This is an excellent story to remind people to think ahead and utilize urgent care facilities (“Bill of the Month: A Toddler Got a Nasal Swab Test but Left Before Seeing a Doctor. The Bill Was $445,” Nov. 27). But why is this family’s bill surprising? I find it reasonable. There was the all-important initial screening by trained personnel — a child may be more ill than the parent appreciates. The medical history was obtained, temperature and other vitals taken, and swabs for the noted tests. That’s all time and effort that could have been spent on another patient. That’s supposed to be free? Surely you’re not implying that ER staff other than the doctors are worthless.

I remember the ’50s, when our local hospital’s ER staff was “on call.” No charge then if you left before you were seen.

— Gloria Kohut, Grand Rapids, Michigan


An emergency physician in Ontario chimed in on X:

— Raghu Venugopal, Toronto


Watch Your Language

It is too bad that an inflammatory article was written like the one titled “How Measles, Whooping Cough, and Worse Could Roar Back on RFK Jr.’s Watch” (Dec. 6). “Could” is just a speculative word and may be associated with fear-mongering. Your bias seems clear. It’s difficult to find unbiased health-related articles nowadays. I request that you write an article concerning RFK Jr. that is not biased — that is not from Big Pharma’s viewpoint. You aren’t aware that the Centers for Disease Control and Prevention, FDA, and other government agencies are industry-captured?

— Wayne Carpenter, Omak, Washington


An infectious disease specialist and senior scholar at the Johns Hopkins Center for Health Security had this to say on X:

— Amesh Adalja, Pittsburgh


Gathering Intel on Plant-Based Diets

I just wanted to say how much I appreciated your roundup of news about prioritizing plant-based proteins (“Morning Briefing: Eat More Plant-Based Foods, According To Dietary Guidelines Advisory Panel,” Dec. 11). The idea that our food choices can come from a place of ethical consumption seems so removed from much of the world today. So many people have questions and concerns about becoming plant-based — is it healthy? What will my friends and family think? etc. But what your newsletter clearly shows is it’s not about what leaving animal products off one’s plate takes away but instead how much trying a plant-based meal gives to the individuals, the animals, and the environment.

Thank you for inspiring change without creating fear. Our future depends on more coverage like this.

— Sara Crane, Toronto


A Slice of Real Life

I really enjoyed your article “Perspective: Removing a Splinter? Treating a Wart? If a Doctor Does It, It Can Be Billed as Surgery” (Dec. 13). The exact thing happened to our family, and I thought we were an anomaly. My daughter got a 1-centimeter cut above her eye after falling out of bed. I took her to MUSC Children’s Health After Hours Care in Mount Pleasant, South Carolina (basically a doctor’s office that is open late). It’s not an ER or urgent care. When we arrived, the receptionist said, “We don’t do stitches here.” I checked in my daughter anyway since the receptionist said the doctor might be able to apply glue to help keep the cut closed. The doctor cleaned the cut with sterile saline, applied glue, and placed a few Steri-Strips. We were billed for “minor surgery” despite no scalpel, no stitches, no lidocaine. I looked up the ICD-10 code, and sure enough “application of tissue adhesive” is a “minor surgery” code. Our out-of-pocket was around $830 with UnitedHealthcare. I still have all the bills. “Liquid bandage” and Steri-Strips can be purchased at Walgreens.

I’ve never emailed the writer of an article, but this got me fired up! Thanks for bringing this to light.

— Cailin Lutz, Charleston, South Carolina


Continuing the surgical thread on X was a professor of medicine and pharmacy at the University of Pittsburgh:

— Bernie Good, Pittsburgh


As a retired primary care physician, I was often frustrated that my management of complex medical conditions was reimbursed at lower rates than the illustrated splinter, or other “surgical treatments” as mentioned in Elisabeth Rosenthal’s article. However, blaming the physician for this discrepancy is inappropriate. The Centers for Medicare & Medicaid Services has strict regulations on billing. We are mandated to code per the regulations. We cannot give “discounts” for these procedures. To do so would be problematic in the bizarre catch-22 world of Medicare billing.

We are mandated to report our services accurately using only the codes available. To do otherwise is considered fraud by Medicare. When a physician is accused of fraud, he/she is presumed guilty and pays significant financial penalties until innocence is proven. Even a murderer and thief have more rights in the judicial system.

Medicare determines the lowest reimbursement rate; the other carriers pay a higher rate based on that rate. If an individual physician accepts Medicare, he/she must accept that rate. Only a non-participating physician (not accepting Medicare) can offer a lower rate. The exception is if the service is provided at no cost. Should the patient demand the service be provided free?

I’m reminded of the plumber charging $100 to replace a washer: 10 cents for the washer and $99.90 to know how to replace it.

— Robert Sullivan, Adairsville, Georgia


No Free Pass for Drug Ads

After reading this article by Elisabeth Rosenthal, “Perspective: With TV Drug Ads, What You See Is Not Necessarily What You Get” (Sept. 9), I wanted to share an opinion about the federal court’s decision to deem price disclosure on pharmaceutical advertisements a violation of the First Amendment. Commercial advertising has less protection under the First Amendment than individual speech. According to the Central Hudson Test, commercial speech, at baseline, must concern a lawful activity and not be false, deceptive, or misleading. Even if the speech meets all these criteria, the government can intervene if there is “substantial” government interest. If there is further regulation from the government on commercial advertising, it must be no more extensive than necessary to serve the government’s interest. Essentially, if there is intervention, it must be warranted, and the regulation must be reasonable when compared to the restriction (U.S. Constitution, Amendment 1.7.6.2).

In the case of pharmaceutical ads, especially those that promote oncology medications, they do not meet the baseline qualifications to be considered “not false, deceptive, or misleading.” It has been shown that pharmaceutical ads can rely on emotional response over rational appeal (Main, et al., 2004). If the ad is going to target an emotional response of a vulnerable population, then what is being sold must be accurate. If they are going to sell a chemotherapy that may not be the best option (but possibly have the most adverse side effects), then there is a government responsibility to protect this population and to be more discerning when determining what is truthful. Furthermore, even if the ads met the basic qualifications, they could still be regulated further due to the government interest in both public health and health care cost. Requiring that the drug cost be shown on pharmaceutical ads is appropriate federal intervention that I believe is more than reasonable when compared to the restriction.

— Molly Hilliard, New York City


A national drug safety advocate and public speaker tweeted on X:

— Kim Witczak, Minneapolis